Carers blog

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Penny pinching con artists ( Aftercare.. my fingernail)

23rd April 2016

Posted by PositivePolly

I'm on my 10th year of my son being out of hospital...He was sectioned for 17 months...not because he needed to be but because I was conned...I believed he had to be sectioned to receive respite in a hospital setting as there was nowhere else to put him..and I was told that I could sign him out..That proved to be a lie...He was instead forcibably held on a section. 
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Passport fees, ink, parking all have to be paid for from disability money.

30th March 2016

Posted by Simone Meiszner

My daughter needs a new passport and this was £76.00 plus 15pounds I ended up spending on the photos as I went wrong. Another 3 pound to return it back safely. Last week I had to park at the station for a hospital appointment. That at a cost of £3.30 each time. I also took my daughter to the library and had to pay £1.30 for parking. Plus she wanted to rent a DVD from the library so another £1.25
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Don't ask me to smile. my teeth are falling out.

24th March 2016

Posted by Simone Meiszner

My front teeth are falling out and I am so low I do not want to see the dentist. I had a repaid paid from my carers allowance so I have a choice. My teeth or a holiday. I have decided that I will book a holiday instead, sod my looks.Where do they expect us to get the money for everything? I am not on benefits. My car passed the Mot but sadly I noticed that the car tax had to be paid too. That also comes out of family money.
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Two London Hospital appointments in a week.

21st March 2016

Posted by Simone Meiszner

Today we were in London and the University College Hospital.They really do an excellent job there. I was watching people walk in and walk out and thought. My god so many people rely on the NHS. The staff at the hospital are all very helpful and the hospital is also very clean.  I had to travel with my daughter to have a heart check. I have to go back on Wednesday to speak to the Specialist. 
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More needs to be done for Mental Health.

05th March 2016

Posted by Simone Meiszner

Mental Health is such a complicated subject because it covers so many different conditions. Whilst I am not an expert on all of them. I have met a lot of different people who suffer from mental health..It covers an array of condtions and can be very devastating.. Whilst anxiety and depression seems to be on the rise. Depression can last for so many years it is heartbreaking to see.
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Let down by the system.

06th February 2016

Posted by Simone Meiszner

We thankfully survived the PIP. The consultation went alright and the doctor was very pleasant. I was in tears because I am so exhausted by the lack of help.. She just said i think you have been let down badly by the system. What she didn't know was the state of my health because of course no real questions are asked about the Carer..Thankfully my daughter will get her money back dated. We had some savings so we have been using them but what if we didn't. How would we have paid for bills or food. How would we have paid to attend a hospital appointment in London...
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The last few years have been the worst.

16th November 2015

Posted by Simone Meiszner

I am just filling up the dreadful PIP forms and as I am filling them up I am realising that since 2010 my daughter's life and mine has gone backwards. This of course since we have not had any help. So with only ten minute Doctors appointment who am I suppose to tell. Who actually knows if I am managing or not. No one.. Even my locl MP didn't answer when I told him I can not manage another year.
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No help with shopping or housework. Who makes the stupid laws?

14th November 2015

Posted by Simone Meiszner

I am waiting to claim PIP for my daughter. I have been reading the points system. I find it hard to believe that help with housework or shopping is not included. So I want to add my thoughts to the current Welfare reform changes and the new PIP on these two subjects. I think It is wrong not to give people with a disability help with shopping and housework, gardening too.. God forbid if I ever became ill as I love the garden and would hate to see it in a mess. The garden can be very theraputic and somewhere to sit and enjoy a little warmth and sunshine.
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Who are Military Young Carers and why do we need to raise their profile?

11th November 2015

Posted by Military Young ...

There are an estimated 170,000 “full time” Service children (The Royal Navy and Royal Marines Children's Fund, 2009) and an estimated 1.4 million veteran/ ex-service dependent children and young people (Royal British Legion, 2014).   Figures from Ministry Of Defence (MoD) show 2,130 military personnel where severely, or very severely physically injured between 2001-14 (MoD, 2014) in combat action (current ratio 1 child per 2.3 vet
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I have lost my carers allowance.

10th November 2015

Posted by Simone Meiszner

This week I lost my carers allowance. The only benefit I claim. My daughter's benefits have stopped too because I didn't receive a letter that was sent. I had informed DWP that I wanted my daughter to be moved onto PIP but I never knew I had to apply for it.I thought they would move her onto it but as I never received any kind of notice her benefits have now been stopped. I was told she would not lose any money and if she is awarded PIP  it would be backdated but what a pain..
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