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Aspergers

By Mum of 5
Tue 18 Mar 2008 10:35

Hi my son is statemented by LEA & at age 16 the powers that be have now just realized that he does not have just MLD but is also on the autistic spectrum Smile emoticon ???????????? Aspergers, but what do I know I'm just his mother, I'm so frustrated angry & sad because things got so bad that he had to go & live with my ex who they think also has aspergers, my son is soon going to camhs for ADOS test, any pointers anyone,

Replies

By julie-ann
Re: Aspergers
Tue 18 Mar 2008 20:51

ive a son of 8yrs he has autisum not sure wot to say keep smiling big hugs to u Smile emoticon

By Mum of 5
Re: Aspergers
Tue 18 Mar 2008 21:18

hi julie ann thanks for the hugs, Big grin emoticon nice to know someone cares, Smile emoticon

By moonstar
Re: Aspergers
Wed 19 Mar 2008 02:15

My 11 year old son was only diagnosed 2 years ago with ASD. Its very hard - he gets frustrated and angry, and pushes everyone away. I'm on my own with my son and so bear the brunt of his outbursts, but it is worth it on the rare occasions that he gives me a hug and says he loves me!

Hopefully you will get a firm diagnosis and help you need to deal with it.

Sorry to post so late at night - he's actually sleeping and only chance for peace - only advantage to being an insomniac!!!

Take care - will be thinking of you both Smile emoticon

By kerry
Re: Aspergers
Wed 19 Mar 2008 20:37

he probably has got it from your ex- they reckon now that theres a link on the blokes side dont they!
I know friends whos kids have aspergers and also their husbands have it.

my daughter went to cahms (even tho its actually my boys severely disabled-she has 'traits' of aspergers) funny enough she just like her dad, my ex too!
they did one meeting with a couple of women, who said they thought she had it but werent qualified to diagnose officially, then couple weeks later another meeting with two others who were able to say that she didnt have it lol

good luck.
im sure you knew all along anyway- i know my girl has aspergers traits- dont need some offical with a medical certificate who met her for about an hour to tell me one way or the other!

Kerry Smile emoticon

By Mum of 5
Re: Aspergers
Thu 20 Mar 2008 08:50

Hi been in and out of cahms for the past 4 years all because all they wanted to do for us was point the bad mother finger,
its been a very rough ride for myself & children ( but ) this time they have no choice but to get it right, the sad thing is my son has gone into shut down living with my ex, I only hope that its not too little too late, thanks to you both taking the time to read my moan, its nice to know I'm not alone on this Laugh emoticon mum of 5

By moonstar
Re: Aspergers
Thu 20 Mar 2008 21:42

Hi.

Sorry to sound dense, but what is cahms?

I live in Northern Ireland and all our services seem to have different names to those in England.

Funny what Kerry said about her ex - reckon mine had more than a few problems (that's why he's my ex - but that's another whole story!!!).

Take care - and remember there are lots of us out there - you are not alone (now I sound like some cheesy sci-fi film!!)

Smile emoticon Smile emoticon

By Mum of 5
Re: Aspergers
Fri 21 Mar 2008 09:16

Hi moonstar
CAMHS is Child and Adolescent mental health services.
I know what you mean about bearing the brunt of outbursts, I lost count of swearing and lashing out years ago,
love what you said about cheesy sci fi, lol Smile emoticon Laugh emoticon

By moonstar
Re: Aspergers
Fri 21 Mar 2008 21:38

Hi.

I can't get my son seen by a Psychiatrist or anyone in mental health even though he hits himself round the head and bangs his head in frustration. He also says things would be better if he wasn't around anymore and stuff like that. I mentioned it to his Social Worker who has just been allocated to him and all she said was "at least he's telling you about it"! I phoned the Psychiatric services direct and they said they were so overwhelmed that unless he actually hurt himself or someone else, they were sorry but couldn't help - bit like shutting the stable door after horse has bolted!!

-My son regularly "switches off" - it's his way of shutting everything out because he is so overwhelmed with everything.

My son also has MLD and other problems.

I sharpened my reflexes dodging stuff being thrown at me! Have also noticed that he only swears when he's getting into one of his rages so I have a bit of warning when it's going to be a bad one!

Hopefully you will get some help with your son's ASD and everything that goes with it.

Don't give up - the sadness and anger is natural - I was told when my son was diagnosed that there is a sort of "grieving process" for the child you will never have. But I was also told that there is no such thing as a "normal" child and that their differences are what makes them special.

Just keep trying to get through to your son - he is probably just as sad, angry and frustrated as you are, but people with ASD find it had to express emotions and feelings, and so they do one of the things that they can do and that is to switch off.

I hope that this helps.

Take care Smile emoticon

By kerry
Re: Aspergers
Sat 22 Mar 2008 08:35

Hi
Just to reiterate what moonstar said: she is right -there is no such thing as a normal child and the tests they do in school (cognitive and so on) by some dead bloke called paiget (at least i think hes dead- if youre reading this mr piaget then obviously youre not) is based on a non existent child.
seriously!
he got a random idea about what a child of such and such age should or shouldnt be doing and based all his tests on that.

ha the swearing:
by 8am this morning (its now about 8.30) i had been called an F**king piece of S*it i dunno how many times, a F**king S*ag, hmmmm... lost count, much much more endlessly.
this was all screamed at top notch- and he manages to blow his nose at the same time (without the added bonus of tissue i might add)
I videod him today for about 30 seconds- always handy for the specialists when they look at him and hes like an angel!
and they all go awwww, hes such a delight lol
Tongue emoticon
hes given me a big hug now and its all forgotten for him anyway)
oh and the reason for the outburst this time?
he had a whole sausage sandwich in his mouth and was trying to grab fruit, and i told him to eat his breakfast first.

Crying emoticon

oh well at least he didnt poo in the bed this morning like he did yesterday....

Laugh emoticon

By Mum of 5
Re: Aspergers
Sat 22 Mar 2008 10:01

hi
my son soils his pants daily but told his social worker he doesnt Roll eyes emoticon
my ex put him on lock down away from the rest of my family I had to bring in child protection Cursing emoticon to make sure he gets the help he needs, even had to go back to square one the GP with a list taken from aspergers Q&A book Roll eyes emoticon
he has never told he loves me or given me a hug without being told to but he has written some lovely stuff about me in school Big grin emoticon
My son did hurt someone & now they are saying ohhhhhhhhhhh S++T we got this one wrong your son has ASD Cursing emoticon no S++T shurlock
sorry for the sarcasum but its really is a case of shutting the stable door Angry emoticon