Discussion Boards Hints and tips
C.O.P.D
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By poppy11
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Tue 8 Jan 2008 16:29
Hi there, does anyone care for somone who has,... chronic obstructive pulmonary disease.? I care for my husband, and although he is not on permanant oxygen, our lives are still restricted, and has changed so much ..... just need to chat bout it somtimes, its been 7 years now.
Replies
- By PeeJay
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Re: C.O.P.D
Fri 11 Jan 2008 21:51I was going to say 'no' but that I understood, to a certain extent, where you're coming from but I've just realised I have to say 'yes'. My Mum suffers from it and she has been into hospital recently for oxygen therapy treatment. I tend to forget she has it, except she is always breathless, because she has so many other things wrong with her it is really pushed to one side. A lot of her COPD symptoms could be related to her heart failure. She is 79 in February, suffers from COPD, heart failure, Type 2 diabetes, poliomylagia rheumatica, osteoporosis and, at the moment, ulcerated ankles ..... I think that's it but there may be something I've forgotten - lol!!
Anyway, the reason I decided to reply to your post was because I was diagnosed with COPD myself, back in the summer. I can see that I will be having major problems as the years progress as the drug, initially prescribed, seemed to work quite well for the first few months but now I seem to be back to where I was before I consulted the medics in the first place. Methinks I need to consult again as they did say that they could prescribe other things to help. I will confess it is probably related to smoking for 40 years but I stopped 3 years ago. I spent 2 years waiting for my lung function to improve and realised that it wasn't going to - hence my consulting my GP and going through the tests.
Anyway, I realise that you probably need to chat to ease the pressures on you so I'm happy to chat sometimes as I could do with pressures being eased as well - and it's nowt to do with my COPD!!
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By babs50
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Re: C.O.P.D
Sat 12 Jan 2008 08:40hi poppy , it was nice 2 chat last night , hope u come back 2 chatroom again soon xxx
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By annam7
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Re: C.O.P.D
Sun 13 Jan 2008 21:39Hi there Poppy. My mother has COPD and I've been looking after her for many years. She is on oxygen therapy and all sorts of medication. I know how you feel as things are extremely difficult for me. I'm here if you ever need to chat.
- By ValerieN
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Re: C.O.P.D
Wed 16 Jan 2008 17:50Hi Poppy. My husband had COPD for nine years and died from it a year ago. He never had oxygen therapy because he would`nt stop smoking and they would`nt give it to him until he died. I know its hard to watch your loved one suffer but you have us here on this site to talk to so I hope it will help a little.
- By AnneB
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Re: C.O.P.D
Tue 22 Jan 2008 01:51hi! I look after my mum (87) I lived in Spain for 13 years and came back to do this - and I wanted to. Just sometimes , like tonight, I get so fed up with the 'spitting' - I wish I knew what to do to make things better for her, and at this time - I feel very 'weepy' and just dont know what to do any more! I cant sleep - I dread going downstairs every morning in case I find her 'gone' - but the worst thing is the 'isolation'! Nobody calls, nobody comes to the house - I darent go out for long - and I have absolutely no privacy! You get to the stage that you think Nobody Cares! IS IT ME? My name is Anne and Ive never been on this site before - just needed to talk to someone. Because I was away in Spain for so long - my friends are either over there, or down south and I never hear from them on a regular basis as before. If? I go out alone, I find myself wandering round the shops - doing nothing! - Still not talking to anyone. Its a very lonely life.
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By Rosie4
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Re: C.O.P.D
Tue 22 Jan 2008 11:16Hi there my name is Rosie my husband has COPD I've been caring for him now for nearly 10 years, before that he was just gradually getting worse & worse with his breathing. Then he ended up on a life support machine for 3 days and that's when he lost even more lung function so I gave up work to care for him. He has nebuliser, all kinds of inhalers and oxygen, he only has a third of his lungs left. I'm glad he's still here with me but our lives have changed so much. I know how you feel, I was crying when I was reading all your messages cos I can sympathise completely. I keep trying to think what I've got instead of wishing things were different but it's not always easy, I do feel sorry for myself sometimes, but then I feel guilty cos I know there's people out there worse off than me. You just have to carry on eh! lol x
- By jonesy
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Re: C.O.P.D
Tue 1 Apr 2008 19:41Hi my name is carole I am 41 and was diagnosed with C.O.P.D about 5 years ago. I am finding it hard to hold onto my job as well as my caring role for my daughter, sister, father and up until late November '07 I also cared for my mum.
I feel so guilty at times when i refuse the help of my daughters. But I also know there will be a time when i will not have any choice. I become frightened at times for when I can't work that all i will get is my low care DLA. How will i be able to support my children i am a single parent !Sorry for going on but today is one of my bad days where i feel so ill and in pain and so consequently feeling sorry for myself - apologies to all
x