SUDEP petition
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By Greywolf
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Tue 13 May 2008 06:34
This petition is running to get more research and information into SUDEP - sudden unexpected death in epileptics.
Please sign it.
Replies
- By EL
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Re: SUDEP petition
Tue 13 May 2008 09:00Signed
lets hope it does some good eh
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By coby6602
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Re: SUDEP petition
Wed 14 May 2008 09:35I've signed too!! Hope more people sign - it only takes a couple of minutes.
- By angelica
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Re: SUDEP petition
Wed 14 May 2008 12:01Have signed. Thanks for bringing it to my attention.
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By ann31bel
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Re: SUDEP petition
Wed 14 May 2008 20:54Hi Greywolf.
I too have just signed the petition!!
hope you are well and your partner is doing ok!!take Care.
Ann
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By coffee
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Re: SUDEP petition
Thu 15 May 2008 15:14Hi grey wolf I saw this sent by moonwolf on forum4e quite a few signed it I saw it here as well so I I have signed it .
Having E myself I know / understand what it is like to suffer from E but suddenly , unexpected lose a loved one in death from epilepsy is really distressing .
So by finding an answer to this research and information into SUDEP - sudden unexpected death in epileptics.
deserve 100% acknowledgment./ backing so thanks for highlighting this coffee
- By moonstar
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Re: SUDEP petition
Sat 17 May 2008 23:25Just signed petition.
All the best
Moonstar
- By Jeanine
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Re: SUDEP petition
Sat 7 Jun 2008 21:05Our daughter died of Sudden Unexpected in epelipsy at the age of 21.
she and ourselfs where never warned of this deadly condition,please support the petition. There are now over a 1000 young people dying of S.U.D.E.P please help this stop!
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By Greywolf
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Re: SUDEP petition
Sun 8 Jun 2008 07:01Todate this petition has only recieved 700 signatures, despite being posted on 2 carers sites and 2 epilepsy sites that I know of. Surley this condition needs all the support it can possibly get?
There are many carers and carees who do not have epilepsy, who have no idea what this is about, BUT for those out there that do care for or have or know somebody with epilepsy PLEASE sign this or pass the information on to any who may be affected by it.
Thank you.
- By papanna
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Re: SUDEP petition
Sun 8 Jun 2008 21:47signed your petition hope it helps