I don't know if i'm coming or going!!!!!

Replies

By Tricia

Re: I don't know if i'm coming or going!!!!!
Sun 11 May 2008 11:03

Hello Kath

Your situation is very common as a lot of boys and girls are able to mask aspergers until they hit adolesence.

Am on my laptop and the battery is going low but if you google national autistic society and see if you have a branch near to where you live. They do an excellent Help course usually for six weeks for carers of newly diagnosed with asd.

I understand how frustrating it is when the so called professionals mess you around. I almost slipped through the net with my son but this was at an early age. The speech therapist said they were leaving and that I would hear from the new one. I never did for almost a year and it was through someone who knew my son being in the right place at the right time to get the process moving once again.

Also for yourself contact your local carers centre and ask them to support you with social services to get your carers assessment done. Even if you have a carers assessment due to caring for your Dad your circumstances have changed due to your son being diagnosed recently

good luck and take care

By EL

Re: I don't know if i'm coming or going!!!!!
Sun 11 May 2008 17:33

Hiya cath, My Adam has aspergers he's 13 and started his assessment at 8+1/2, i was told that it would take 3 to 4 years to complete as psychological disorders could br ruled out. If indeed you do get his final diagnosis at the end of may then that would sound about right. I did something quite bad to get my Adam the attention he needed knowing he reacts to food colourings and flavours i gave him skittles 30 mins before each appointment so he was nice and ready when we got there. He bounced all over the place but more importantly his traits really came to the fore so all could see him at his worst. I had to do it as we were getting nowhere fast and would still be under assessment to this day im sure

By coby6602

Re: I don't know if i'm coming or going!!!!!
Sun 11 May 2008 22:26

Hi Tricia & El, Thanx so much for your replies. It's good to know that i'm not alone in this situation ( which is disgusting really as delays like this should be a rareity). Thanx for the skittles tip El, i might just try that as Mark has been remarkably well behaved during his assessments ( although he did smack his 1st psycologists head cus he was bald and called him bal head continuously for 1/2 an hour ). Mark is doing well at school and doesn't really have behaviour problems as such, he just has no social skills. He doesn't know how to interact with kids his own age (or adults either) and doesn't really have friends. His 'best friend' is his 5yr old nephew!! He seems to only feel comfortable with kids who are much younger than him or a lot smaller. He doesn't seem to have a clue about what is socially acceptable. He recently pulled a 6yr old girls trousers down in the street just cus he thought it was funny and can't understand why her family and i was so upset by it. I find it so hard to explain to people as he hasn't had an official diagnosis yet. Kids half his age don't want to play with him as he is too rough and has hurt a couple of them when he has lost his temper with them. I worry about him so much and i don't know what reaction to have if the diagnosis is aspergers or hfa. I dont know if i should be relieved at finally knowing whats 'wrong' and glad that he can finally get help. I'm so confused by it all !! They say he will have to be refered to Rygate after and i don't even know what that is really. Anyway, Im sorry cus what i thought was going to be a short reply has turned into another epic

By kerry.

Re: I don't know if i'm coming or going!!!!!
Mon 12 May 2008 22:11

A great book to read is "The curious incident of the dog in the night time" by a guy called mark haddon i thiink his name is.
you would think it had been written by a 15 yr old boy with aspergers!
Might help you understand his world a bit more maybe????

Bless him. its so hard when we see our kids lonely but hes probably ok with it, more than you are!

Good luck and keep fighting