Discussion Boards I care for...
new on site
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By ena
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Sun 6 May 2007 19:19
We are new on the site. I have an 18 years boy with cererbral palsy and his brother 15. I care for him at home full time since he left school (we daren't go to Social Services because of what they have done to us in the past) & some of the provision is woefully inadequate.
Replies
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By liz-39
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Re: new on site
Sun 6 May 2007 20:17hi i care for my two boys lad nearly 15- A.D.H.D.
AND A LAD 9 1/2 WHO HAS DOWNS SYNDROME
i have never had any invlovement with social services,
i hope yuou get the answers you need here, or just have a good old moan lol
that does me the world of good lol
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By coffee
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Re: new on site
Mon 7 May 2007 12:06
Hi ena a warm welcome
Glad you have found this site as you will find that all the carer;s here are really upbuilding .
I understand about going to SS they are not always the right people to contact from other carers remarks they can be more trouble than they are worth .
So perhaps contact your local carer centre to seek so sort of help either home/ or help for carers on this site or carers uk ( thats if you wont to) but if you dont we all carers here are always here to chat with you so a real big welcome and please dear look after yourself coffee
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By ena
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Re: new on site
Tue 8 May 2007 15:51Thanks to those who replied. I just think I'm a bit depressed at the moment, hardly got any energy - but the thing to do is keep busy. I'm sure all the carers on here know how it feels
- By Pysie
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Re: new on site
Tue 8 May 2007 16:37Hi, ena,
It's not easy coping with teenagers at the best of times, but I can imagine how difficult it must be for you. A friend of mine cares for her son who has CP. He is now 24 but, like you , she has always refused to involve Social Services in his care.
However, she did get a lot of support and advice from her local branch of SCOPE. They were able to advise her on benefits and other rights, arrange respite holidays for Nick and organise a computer and a 'motorbility' car. And they helped Nick find work.
Their web-site carries advice and details of local groups: www.scope.org.uk
or phone the advice line on 0808 800 3333
As far as Social Services is concerned, you son is now an adult and, assuming he is not mentally incompetent, SS would have no right dictating what he should, or should not, do. If you need someone to help with your son's care, you may find he is entitled to 'direct payments'. If so, it would mean your son could claim money to employ a carer himself. If you don't want to discuss this with SS, have a word with SCOPE or phone:
The Carers Helpline - 0808 808 7777
It sounds as though you need to recharge your batteries. There IS practical and emotional help out there and I am sure SCOPE can point you in the right direction. And do visit the chat-room here (after 7.30pm is the best time). You will be able to chat with other carers who understand how you feel.
Love
Pysie