Our publications
The Princess Royal Trust for Carers (now known as Carers Trust) has produced the following publications with various partners, covering key areas and issues relating to caring.
You may also like to refer to the publications on our Professionals website, which we have built specifically for professionals working with carers.
For any copyright queries, please see the Copyright FAQs document
A systematic review of interventions for carers in the UK: Outcomes and explanatory evidence
A systematic review of the research evidence on carer support by Elizabeth Victor, PhD researcher at the School of Sociology and Social Policy, The University of Nottingham.
A systematic review of the research evidence on carer support by Elizabeth Victor, PhD researcher at the School of Sociology and Social Policy, The University of Nottingham.
This report raises awareness of how caring affects the physical and mental health and wellbeing of older carers. At a time when they may be facing health challenges of their own they have to take on a physically and mentally exhausting role. As a result, they may neglect their own health needs because they are so focused on the health of the person they are caring for.
Best practice, better practices – A new deal for carers in primary care
This report builds on and up-dates the research and evaluation of primary care initiatives carried out in 2003 for the publication Primary Carers – identifying and providing support to carers in primary care and presents the findings from three demonstration projects across England. The work forms part of a primary care project funded by GlaxoSmithKline and managed by The Princess Royal Trust for Carers.
This report builds on and up-dates the research and evaluation of primary care initiatives carried out in 2003 for the publication Primary Carers – identifying and providing support to carers in primary care and presents the findings from three demonstration projects across England. The work forms part of a primary care project funded by GlaxoSmithKline and managed by The Princess Royal Trust for Carers.
This first national report on housing issues affecting the UK’s six million carers was launched March 2010 with support from Department of Health. The report, based on wide consultation, highlights successes and challenges in current practice and commissioning and makes calls for policy changes.
A new manual to provide health and social care practitioners with a tool to measure the quality of life of adult, unpaid carers has been launched today (Wednesday 16th February 2011).
Results from a comprehensive research study conducted throughout Great Britain to investigate the health of carers across Great Britain, specifically the main health problems that carers suffer from.
This report presents the findings of the survey distributed to over 8,000 carers in 2002, the largest consultation of carers at that time. The responses to the survey questionnaire and the comments from carers at the twelve consultation events offer a view from the experience of some 3,800 carers.
Summary of the report which presented the findings of a consultation of 8,000 carers.
The report dentifies six examples of good practice and contains recommendations for further action on ensuring that local carers centres are engaging with BME and seldom heard communities.
Published September 2009, this step-by-step guide aims to assist commissioners in health and social care in supporting carers through the commissioning cycle by providing councils with a new blueprint for buying services to help carers.
Produced as part of the ‘Carers speak out project’, a national consultation funded by Barclays Bank Plc. and managed by The Princess Royal Trust for Carers.
A summary of the report Consultation with carers: Good practice guide.
This report contains the findings of a survey conducted through The Network of Carers’ Centres in 1998.
Emergency schemes for family carers involve the establishment and delivery of an agreed plan of action and of alternative care in the (hopefully, unlikely) event of an emergency affecting a carer’s ability to continue to provide care to someone who needs their support or supervision.
This guide can be used by a wide range of professionals in different ways.
Summary of Focus on carers and the NHS - Identifying and supporting hidden carers: Good practice guide.
Published in 2006, this document summarises the work carried out by The Princess Royal Trust for Carers to improve health services for carers.
Keeping it in the family: Growing up with parents who misuse alcohol
Produced in partnership with Age Concern, this publication looks at how parental alcohol misuse can impact on the children and what support is needed
Research highlighting a patchwork of service provision to young carers across the 32 local authority areas in Scotland and an uneven distribution of services within areas.
Showing each constituency in Scotland.
My Care
A report on the challenges facing young carers of parents with severe mental illness.
A report on the challenges facing young carers of parents with severe mental illness.
2011 research into whether PCTs have published their plans and budgets showing how they will implement the refreshed Carers Strategy in England.
Roundtable report, published 2009, providing some context to early thinking on welfare benefit reform for disabled people and carers, through considering the differences and commonalities in the issues facing families with care needs across the four nations.
Putting people first without putting carers second
Produced in partnership with Crossroads Caring for Carers and launched 26th February 2009, this report investigates how carers, and the services that support them, are responding to the personalisation agenda.
Produced in partnership with Crossroads Caring for Carers and launched 26th February 2009, this report investigates how carers, and the services that support them, are responding to the personalisation agenda.
Published in 2003, this report is the product of the research and evaluation phase of a project on primary care initiatives. The project was funded by GlaxoSmithKline and managed by The Princess Royal Trust for Carers.
A summary of the report Primary carers - Identifying and providing support carers in primary care which investigates the relationship between carers and primary care,.
A good practice guide for carers support workers and GP practices published in 1999.
Social return on investment report (full report)
A report on the improvement in outcomes for carers achieved by the work of Carers’ Centres, based on a detailed evaluation of five case studies. Uses social return on investment research methods to demonstrate the significant financial value of Carers’ Centres.
Published in 2007, this reports a study funded by Scottish Government with the aims of exploring the quality of support services carers received, how they helped improve the carers' life and to identify gaps in existing provision.
A summary of the report published in 2007.
Supporting carers: An action guide for general practitioners and their teams
Launched 22nd October 2008, this action guide was developed in collaboration with the Royal College of General Practitioners (RCGP) and aims to raise awareness of carers and develop an action plan; pool the team’s knowledge and skills; establish systems to identify carers at the earliest possible stage; identify and link to agencies offering support; support employees who are carers; evidence and share good practice.
Launched 22nd October 2008, this action guide was developed in collaboration with the Royal College of General Practitioners (RCGP) and aims to raise awareness of carers and develop an action plan; pool the team’s knowledge and skills; establish systems to identify carers at the earliest possible stage; identify and link to agencies offering support; support employees who are carers; evidence and share good practice.
This report demonstrates how using funds allocated by the Government to increase support for carers also benefits the people being cared for, and reduces demand on other health and social care services. It uses evidence from randomised controlled trials (RCTs) and peer reviewed journals and gives examples of services that have shown success in supporting carers. It will be of special interest to commissioners and finance directors in health and social care, general practitioners and councillors.
Launched May 2010 as part of a UK-wide campaign, this resource will help all schools in the UK to identify and support young carers and their families more effectively.
It takes staff through all the necessary steps needed to help young carers, from developing their understanding of young carers, through to practical and strategic support and finally onto building a healthy school environment where young carers can flourish.
This report provides a summary of the development of the first ever Scottish Young Carers Festival that took place on the 13th and 14th of September 2008 and the consultation that took place during the festival.
Training for the Trainers pack
To accompany the Literature Review and Resource Pack, The Foundation for People with Learning Disabilities has produced a Training for the Trainers pack, a PowerPoint presentation aimed at Carers’ Centre and Crossroads Care scheme staff and volunteers who are intending to improve or develop services for family carers of people with learning disabilities and carers with learning disabilities.
Published by The Princess Royal Trust for Carers and the National Mental Health Development Unit, this document emphasizes the need for better local strategic involvement of carers and families in the care planning and treatment of people with mental ill-health.
The Triangle of Care Project Update
Find out what’s been happening across England to bring together all mental health service providers since The launch of The Triangle of Care in July 2010.
This pre-Green Paper roundtable drew together voices from carers’, disability rights and service user movements in order to explore and subsequently publicise shared positions on some of the key questions about care and support currently faced by families, including the significance of the independent living agenda.
A good practice guide for professionals working with young carers.
