New research finds unpaid carers struggle without support

A worrying 64% of carers have never accessed any support services, such as respite breaks or counselling, and have only sought help from family and friends according to new research by Carers Trust. Furthermore, 60% of those that have been caring for more than five years have done so without any extra support.

The new research reveals that almost half of carers struggle on with their caring role without realizing there is any help available.

Anne Roberts, Chief Executive of Carers Trust said: "As this survey shows many unpaid carers have never accessed any support services to help them in their caring role. We already know that many carers simply don’t have any awareness of the kind of help that is out there and what a huge difference it could make to their lives."

The survey of 500 unpaid adult carers also finds that long term caring without support can cause serious problems in carers’ lives. Almost 6 in 10 said that being a carer had a negative impact on their working life. Over half said that their mental health has suffered due to their caring role, and over a quarter said both their physical and mental health has been negatively impacted by their caring role.

Film and TV stars Helen Mirren, Dame Judi Dench and Joanna Lumley are among the well-known names supporting Carers Trust. Dame Judi Dench said: ‘There are almost six million carers in the UK and the number is rising. Many of those carers are unaware of the support that is available to them and continue looking after their family or friends without any help and often at a cost to their own health and wellbeing.’

Carers Trust, recently formed by the merger of The Princess Royal Trust for Carers and Crossroads Care, works to improve support, services and recognition for anyone living with the challenges of caring, unpaid, for a family member or friend who is ill, frail, disabled or has mental health or addiction problems.

Her Royal Highness The Princess Royal, who has agreed to be President of Carers Trust said: ‘Carers Trust will provide a united and stronger voice for unpaid carers which will enable us to continue to raise awareness of carers’ issues with Government, other policy makers and the general public and hopefully increase funding opportunities to develop and deliver the services so needed by carers and those they care for.’

Downloadd the research (conducted by Yougov on behalf of Carers Trust)
 

Comments

I have been a carer for my

I have been a carer for my partner and apart from her getting attacked by the dwp as fit for work of which she is not.I personally am struggling to cope with it all i havent had a holiday in 3 years and dont know how much longer i can carry on,Help me please what can i do where can i go.

This sounds similar to me but

This sounds similar to me but there is help out there as I found out the hard way. Try your County Council and don't stop trying until you get through to the right person. Ask what grants they have for respite care,the government has given County Councils money for this;Also ask for a full assessment of your needs as a caner as well as your partner;Also go to your GP and ask for their help in accessing the help you need tell them that you are struggling and need help; If they cant help ask the district nurses
We also go to a wonderful place in Brittany France it is called I need a holiday too look up the web site. They provide holidays for disabled people and their carers; They have all the equipment you might need and they provide carers if you need them. It is easy to get to not much traffic in that part of France a really relaxing holiday we are there now!!!

I have been a CARER for 26

I have been a CARER for 26 years and i know exactly how you feel. I have had to fight for help and support all the time,i do not have much money of my own except carers allowance,and all this stuff in the news about pensions I COULD NEVER AFFORD ONE.
the government wants to make budget cuts BUT CONVENIENTLY FORGETS THAT CARERS LAST YEAR SAXED £119 BILLION POUNDS.
I am very concerned that they will try to totally take away DLA and try to force many disabled into situations that will only cause GRIEF AND SUFFERING.
My own health and wellbeing has suffered, iahve recently had one to one councelling for severe DEPRESSION and i am on medication,i still find sleep difficult - i am often worried and see very little or no hope at all for what the future holds.

WHY DO SUCCESIVE GOVERMENTS CARE SO LITTLE FOR THE CARERS OF THIS NATION AND WHY ARE THEY TRYING TO UNDERMINE AND BRING US DOWN.

IF THEY GET THERE OWN WAY WHO WILL DO THE CARING

Knowing that the above report

Knowing that the above report indicates that local authorities do not have enough money to help Carers why not campaign for more money to be safeguarded for Carers from local authority budgets?

At present it is next to impossible to get local authority funded help specifically for Carers as most of the tasks are deemed to be "domestic duties". Any personal care of the person cared for is said to be provided out of the person's DLA entitlement (if they have any), but DLA does not get granted for "domestic duties" such as shopping and hoovering etc.

At the moment there seems a big gap between Carers that need help day to day, maybe an hour or two each day and the people they care for who may not qualify for any care at all even though their disabilities may be severe.

When everyone starts to lose their DLA next year (unless you are under 16 or over 65) Personal Independence Payment will only be paid to about 80% of those who used to get DLA. 1 in 5 disabled people will be left with no support and that will impact Carers and LAs even more.

If you are aged 16-65 and claim DLA at any level you will get a letter telling you to claim PIP then your DLA will end in 4 weeks after that, This starts next year in 2013.

I would like to see Carer's charities speak out about this looming disaster and actively campaign against the proposed roll out timetable for PIP.

It's not always the case of

It's not always the case of they dont know there is help.
I have a disabled daughter of 5 nearly 6 and have looked after her myself all her life, (and still work school hours so I can not be accused of not paying for myself and daughter) there are some weeks when I have no sleep all week and have no help. We have just lost her mobility car even though she has just been given a wheelchair. But I know there is help out there, it is just the fact that no matter how much I try and get some help or where I go, I CANNOT get any help.
I asked for assessments for us last year so I could get respite and help, and they came and did the assesment then never got back in touch. When I finally got to speak to someone after ringing and leaving them msg's for months they said they had left a msg on the answer phone (no they didnt or I would have rung back) but the assesment had now run out and they couldn't do another one for a certain period of time.
It is rediculous even if you know there is help, and you try to get it, you are ALWAYS fighting a losing battle, you can never get any help, and you are constantly fighting to get nothing and no where... It is not fair! There are alot of people that get help and dont need it, and the people that do actually need the help and are disabled cannot get anything!

It's not always the case of

It's not always the case of they dont know there is help.
I have a disabled daughter of 5 nearly 6 and have looked after her myself all her life, (and still work school hours so I can not be accused of not paying for myself and daughter) there are some weeks when I have no sleep all week and have no help. We have just lost her mobility car even though she has just been given a wheelchair. But I know there is help out there, it is just the fact that no matter how much I try and get some help or where I go, I CANNOT get any help.
I asked for assessments for us last year so I could get respite and help, and they came and did the assesment then never got back in touch. When I finally got to speak to someone after ringing and leaving them msg's for months they said they had left a msg on the answer phone (no they didnt or I would have rung back) but the assesment had now run out and they couldn't do another one for a certain period of time.
It is rediculous even if you know there is help, and you try to get it, you are ALWAYS fighting a losing battle, you can never get any help, and you are constantly fighting to get nothing and no where... It is not fair! There are alot of people that get help and dont need it, and the people that do actually need the help and are disabled cannot get anything!

I tend to read and hear the

I tend to read and hear the same things over and over again; for all the talking and surveys conducted - not a chink of light with regards to a positive outcome for the unpaid carers who are the backbone of our caring community. I assisted with a similiar survey several years back for 'Carers' - nothing has changed since then. I have been a full time 24/7 carer for 11 years to my husband who has MS. Not a job that I applied for and certainly not one that I wanted but one that came out of necessity. In 11 years we have never had respite care of any sort despite seeking it via Drs/Hospitals/Social Services. Was given the name of private MS nursing home who would look after him for a week at a cost of £4000 whilst I had a break. I do not get Attendance Allowance either because I have a small pension! I've said it before so will say it again - being a full time carer with no help physically or financially is likened to the Three Wise Monkey's.
No one hears you; No one sees you and no one talks to you. You become a dislodged and disabled member of the community yourself as you lose your own confidence, status, finances, social life, friends, holidays, freedom....partner...a marriage ..the list goes on. It is important that those that we care for are not turned into second class citizens, but it is perfectly alright to make us carers into them!

I am a single mother to 2

I am a single mother to 2 little girls my youngest child has some sort of lung disease which her doctor is struggling to diagnose she has been in and out of hospital for a week at a time for the past 7 years she is now suffering extended lung damage which is resulting in her fighting to stay out of intensive care and intense treatment which is causing damage to both my daughters and my own mental health I work and care for my daughters and am fighting for dla for my sick child this has caused huge stress on my family and exhaustion my oldest child is being removed from her bed at unsuitable times at night whilst I go into hospital with my sick child which is causing damage on her schooling I have fought best I can to get some help and support and feel like there is no possible answer just because this doctor cannot diagnose what is causing my daughters sickness I have been off work for months to care for my child with no pay and cannot support my children's home needs either

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