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mobility for children

By lukluc
Fri 5 Feb 2010 12:44

My daughter will be 3 soon, and i will need to re-new her dla and also complete the mobility part.

She has taken her first steps approx 5 in total \(in doors) her balance/co-ordination ect is very poor and she has monthly physio.

Is it worth trying to get mobility for her given that she has taken a few steps? I know its very difficult to qualify for this part of the DLA. She also has downs syndrome and her whole learning/understanding is delayed.

Thanks for any advice/tips in advance
xxx

Replies

By astronut astronut
Re: mobility for children
Fri 5 Feb 2010 13:44

Hi, congrats on getting her to her first steps!

It's definitely worth trying - one way to look at it is to compare her to an 'average' 3 year old. The average 3yo would be running, jumping, not just taking their first steps, so this shows the difference and her need for extra help. We get used to our way of doing things and just take it all in our stride most of the time - the comparison is a useful way to get the point across,

good luck Smile emoticon

just sent my son's off, fingers and everything else crossed now!

By lynba2 lynba2
Re: mobility for children
Fri 5 Feb 2010 14:16

hi yes just go for it my son didnt walk until he was about 4 then with a walker so put in for it straight away you cant lose anything love xxxx

By Lisa J
Re: mobility for children
Fri 5 Feb 2010 14:39

hya, you have nothing to lose by sending it in anyway!! She isn't actually walking unaided yet so there is no reason why you shouldn't get it!! As astronut said your average 3 year old is already running by then!!

Good luck XX

By meg mackenzie
Re: mobility for children
Fri 5 Feb 2010 18:45

Get the forms in asap. Worst they can say is "no" which lets you ask "why not?".

Take care
Meg

By kerry. kerry.
Re: mobility for children
Sat 6 Feb 2010 00:53

You're damn right she should get it. It's not only about how far she can walk aided or otherwise. It's also about presenting a danger to herself or others for example.
I have had it for both my boys since they were 3 and they can walk fine- they can also run bloody fast too- straight under the wheels of a car if I didnt supervise them constantly

Is she on High rate DLA? Cos she has to meet certain criteria to get this part- so part of it says she must be so severely mentally impaired to need 24/7 supervision (words to that effect). Now if she needs constant supervision then it follows that she needs this when out and about?
She cannot be left unattended for example to walk away from you without you constantly watching her.
Now obviously shes only tiny so you would expect that to a large degree anyway, but if she needs more help/supervision/ etc than another child of her age who isnt disabled then she is entitled.
I'm gonna go check on my documents as Im sure i have the actual wording on there from when I appealed my elder boys lowering of mobility to low rate recently...... went to tribunal and won hands down....
hang on............

By kerry. kerry.
Re: mobility for children
Sat 6 Feb 2010 00:57

To use subsection 12 (3), Section 73 (severe behavioural problems)
CDLA/2470/2006
Under the terms of the ‘Social Security and Benefits act, 1992’.
Section 73- Mobility Component
Sub-section 3.
A) A person falls within this sub-section if he is severely mentally impaired and B) he displays severe behavioural problems and he satisfies both conditions mentioned 72 (1) (b) and (c).

This is the only bit i can copy and paste as the rest is personal but it gives you an idea. Look up this act if you can and go to welfare rights before you complete the form if you get stuck
when u complete the part about what u would do if you had mobility component, tell them the things that your daughter likes doing. For example swimming, socialising with friends, the park, cinema etc etc you get the idea.
Smile emoticon

By kerry. kerry.
Re: mobility for children
Sat 6 Feb 2010 00:59

Also get her physiotherapist to write you a suporting letter nad anyone else involved in her care such as social workers, doctors, specialists etc. Enclose these (after photocoying them first) with your claim pack and dont let them tell you shes not entitled. if they refuse make sure you appeal and take it to the limits (tribunal) Smile emoticon

By loopy
Re: mobility for children
Sat 6 Feb 2010 14:20

as kerry says, its not just if they have discomfort walking, its also if they present a danger to themselves or others. Charlotte has no danger sense whatsoever and doesnt see dangerous situations eg, a car coming down the road and her walking out into the road just cos she had spotted my mom on the other side !! it was only by my fingertips that i dragged her back and stopped her going under wheels. I have to have eyes everywhere with her !! Last week, i turned my back and she shoved her fingers in the toaster whilst it was on. She wanted to get the crumpets out. Sad emoticon

By loopy
Re: mobility for children
Sat 6 Feb 2010 14:24

i have just finished filling in the renewal forms for charlotte. They are the most mind numingly boring things and they ask the most ridiculous questions, like how long do you spend on the toilet??? how long is a piece of string?? if she is constipated 20 minutes or more !! Roll eyes emoticon

By kerry. kerry.
Re: mobility for children
Sat 6 Feb 2010 19:55

Yes I agree Lisa th forms are so badly designed and I'm sure designed to embarrass and humiliate. If they design them like this they know damn well that either the disabled person or their carer will be loathe to put in true and honest answers for the embarrassment.
They also repeat questions- so I'm sure they do this to try and trick you.
LukLuc; when you complete your daughters form take your time and refer back and back and back to see the answers you've already given. Don't try and do the forms all at once, do them over a few days because you think of things better like that. Think of a time when you've taken your daughter somewhere and had trouble due to her disabilities; either running away or wandering off or throwing herself down with fear/frustration etc.
I know small kids do this anyway but more pronounced than a normal terrible twos tantrum type thing.
Smile emoticon