KENT MUM OF 4 YEAR OLD ASD SON

Replies

By adhd son

Re: KENT MUM OF 4 YEAR OLD ASD SON
Mon 19 Nov 2007 21:06

Hi I care for a child with ADHD and learning difficulties and feel very lonely at times as other really do not understand the impact upon the family. I live in west yorkshire so a long way from you but thought I would say hi anyway

By MADMUM30

Re: KENT MUM OF 4 YEAR OLD ASD SON
Mon 19 Nov 2007 22:11

hi adhd son, thanks for the reply. it can be very lonely and stressful at times but i would not change the way my son for the world. have you got any support groups etc. near you as it really can help with the isolation of being a carer.

By tired lady

Re: KENT MUM OF 4 YEAR OLD ASD SON
Tue 11 Dec 2007 18:47

hi Mad mum,
Im a mother of three autistic boys. I currently live in devon. But I come from north kent. . I moved to devon from kent 2 years ago. I still come home regularly as i have all my family there. i moved here To get more support for my sons. One of the best support groups in kent I went to was in margate. i had to travel over 40 miles to get there. but it was worth it. It is a support group and youth club for children on the autistic spectrum. ages 1 - 19 they are called the Thanet Autism Zone (TAZ) they are on the web if you want to find out more. They have expanded since I MOVED AWAY SO THEY MAY HAVE MORE groups in other towns. It is all run by families.

By david

Re: KENT MUM OF 4 YEAR OLD ASD SON
Sun 16 Dec 2007 20:00

Re: Kent Mum of 4 year old son / Madmum30
Hi, I'm David,
Father to a 25 year old lad with cerebral palsy who is wheelchair dependant and users a liberator for communications when he feels like it. The rest of the time he expects people to understand him. Very frustating!
I'v set up a music group in Middlesbrough for people like him to let go. (based on percussion)
Why not set up your own group. I'm sure a church hall may be available or to start with why not from home. Your council's Social Services may also want to help. It also helps loose another evening of isolation because by the time you get home, it's time for bed.
I'm in the same boat of isolation after a certain time at night once all the chores are done but cannot bring myself to tell someone asking me 'How are you?' All I ever say is ' I'm alright and change the subject' and not how lonely a job it is.
Are we a special breed?

By Marion28

Re: KENT MUM OF 4 YEAR OLD ASD SON
Sat 29 Dec 2007 10:09

I am single Mum - with 3 young children - my eldest son is ADHD and has higher level functioning asperger's syndrome and my eldest daughter has an extremely rare form of downs syndrome - I understand what is like to be isolated and I am here for anyone else who would also like to discuss or share problems.

I am planning to set up a local support group for children with special needs - even the undiagnosed ones.
In the future I plan to open a support centre for families who would like some respite - although there are some already that I know of.

You can contact social services for a list of these places - they can provide support and care for when you need a break and also help you make contact locally with people who have children or adult relatives with disabilies.

Its hard when you have to manage 1 disabled child let alone when you have more than one with difficulties and my heart felt praise goes out to any of you who are managing alone or otherwise with the challenges of your special person.