Continuing Healthcare - continuing from what???????

Replies

By J Peg

Re: Continuing Healthcare - continuing from what???????
Mon 8 Feb 2010 21:55

Woodstock what a dilema for you wanting to be with your dad when you know his time is limited but wanting proper care at home to. As for the "official" care system makes you wonder - my mum has just been called to a stroke clinic at the doctors - it says on the letter that it is important that she attends for her well being and continuing health so that they can monitor her and assess her risk of further strokes - the stroke they are referring to was 10 years ago and this is the first time they have taken any interest!! I suspect its something they get paid for like flu jabs so now they are keen. Like you I am so disappointed with the system that I try to do everything myself. Thoughts are with you - take care

By woodstock

Re: Continuing Healthcare - continuing from what???????
Mon 8 Feb 2010 22:28

The strange thing is that we didnt actually ask for this Continuing Healthcare!
We hadnt seen or needed a District Nurse for 18 months but I was a little worried that a skin tear Neil had wasnt healing so I called them. This resulted in not only one nurse coming but a Case Manager who strutted around our home assessing how it met Neils' needs and saying that she had been in post for 18 months and it was about time she did an assessment. The nurse left and she stayed an hour asking questions and Neil asked about the possibility of cover to manage his bowels if I had to go down to my Dad. She said she thought that would be OK and suggested applying for this CH. Now we are left wondering
why?? She asked how we were coping and I said that we were coping fine - especially seeing that we hadnt needed a nurse for so long! I have to say as well that as far as the skin tear went all they did was tell me to keep it clean and put Sudacreme on, which wasnt working!! So I told them I thought the edges needed holding together and suggested steristrips which they then gave me some of and went away saying they would come back in a week. We then had to go down and see Dad and when we came back I rang them to say we were back and that it had healed but they said they would come next week anyway. The nurse who came then proceeded to ask a lot of questions which we queried the need for and she said it was to "update their records"!
Today 2 case managers came at an hours notice and told us that they should be able to do the cover IF we give them a few days notice [thats not goona be feasible when Dad is terminally ill and I might have to go at a moments'notice and that it would have to be before 7 at night because although they work until 9 they are not allowed to travel out of Spalding [3 miles away] as part of lone-worker protocol!! Its a joke.
You find yourself yet again explaining why SS arent ever going to help with 10 years of history, why Neil got depressed and attempted suicide, even why our boys couldnt cope in school and the LEA didnt support them and we had to Home Educate and feed them cups of tea just to be told yet again you wont get any useful help or support.
You are left yet again feeling violated and examining their behaviour and motives and wondering why you let yet more numpties into your home to abuse you basically.
We are fine, we cope, we get on with life. Its not happening again.

By J Peg

Re: Continuing Healthcare - continuing from what???????
Mon 8 Feb 2010 22:34

My situation is not a fraction of yours but I often feel like Alice in Wonderland the only same person in a world gone completely mad!!! Like you say they offer you help and at the end of it you feel completely violated and then they snatch it away and say you don't qualify anyway!!! No wonder we all suffer from stress.

By J Peg

Re: Continuing Healthcare - continuing from what???????
Mon 8 Feb 2010 22:35

Typo - I meant SANE person not same person.

By woodstock

Re: Continuing Healthcare - continuing from what???????
Mon 8 Feb 2010 23:22

Great Grandma had a plaque which read:
All the world's queer, save thee and me, and even thee's a little queer!

By kerry.

Re: Continuing Healthcare - continuing from what???????
Tue 9 Feb 2010 11:53

My great grandfather in law had a saying when people said theworlds a funny place, he'd say it aint the world mate it's the people in it!

I bet you're sleeping easier though Fen knowing you helped someone tick some boxes to justify their existence! An exercise in pointlessness for us carers, but to them, the difference between thinking that they'v done their jobs!!!!!!!

By woodstock

Re: Continuing Healthcare - continuing from what???????
Tue 9 Feb 2010 18:42

If you dwell on all the box tickers and the money they are paid to tick them and how none of it actually helps anyone except the box tickers by keeping them employed on the governments job creation scheme being paid reasonable salaries with sick leave and holiday pay and even positive appraisals to keep them motivated when we have to care 24/7 for £53.10 a week with no sick leave or cover and holidays and have to motivate ourselves to keep going.............................................................................we are going to heaven aren't we Kerry???????

By kerry.

Re: Continuing Healthcare - continuing from what???????
Tue 9 Feb 2010 19:07

with bells on and trumpets hearalding our arrival Fen!!!!!!