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By ena ena
Fri 29 Aug 2008 12:05

I have a 19 year old son with cerebral palsy, had this conversation with a neighbour yesterday after I mentioned he had finished school, she said 'why don't you have him put away, be with his own kind, be stimulated, look at colours etc' This happens time & time again with people we know, people we don't, on holiday. It's been said 'you're lives must be hell' - whilst difficult I certainly wouldn't describe them as hell.

There seems to be a marked change of attitude when they reach 16/17 (well they're not cute little disabled children any more are they?) off the general public & health care professionals in particular that they should be 'away somewhere'' so much for inclusion in society.

Anyone else noticed this?

Replies

By katew
Re: people
Fri 29 Aug 2008 13:03

ena

ithink people dont really "SEE" disabled adults at all, i think as long as you just get on and cope no one cares.

As for your neighbour saying you should put your son away i would loose no sleep over telling her to go forth and multiply using very very strong language.

i hope you did tell her what you thought and put her firmly in her place, the mood im in, give me her address and i will do it for you.

best wishes to you and your son

kate

By loopy loopy
Re: people
Fri 29 Aug 2008 18:48

what a cheek your neighbour has. Maybe its them that should be put away , not your son

By Silver lining
Re: people
Fri 29 Aug 2008 18:51

Hi ena,
Well, we have been looking after a lad for 27 years (he is nearly 30 now) who has SLD and I can only say that once they leave the childrens 'team' life changes dramatically....for the worse!

There is certainly far less for adults than children and as far as disability is concerned....we have to get on with it. So it is not just people 'outside' but also those who should know better. Sorry to give you the obvious news. So unless one is prepared to 'give up' and say..."I am no longer going to care, '
then there seems little help....Yes, it would seem the powers that be rely on emotional blackmail ....they know that most parents/carers wouldn't do that. Cursing emoticon
I think we are between the devil and the deep blue...
Wishing you all the very best.
Keep smiling, 'cos we know what joy there can also be.
Silver
Smile emoticon

By hal
Re: people
Sat 30 Aug 2008 07:48

Your neighbour should be ashamed of themselves. Would they think in the same way if they were in the position of looking after somebody like this. I doubt it very much. I admire the way that people like you get on with life and the disabled people i see when i am out and about on their wheelchairs & scooters. To me they should not be treated any differently to other people.