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High Rate Mobility
- By blondie79
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Mon 21 Jul 2008 12:41
Hi im new here and im asking anyone who has any info on high rate mobility.
My son Owen has ASD & DYSPRAXIA. At the moment he is on low rate mobility and middle rate care.
I re-applyed in April so just waiting to hear as he is getting alot worse. I have to pick him up to put him in the car and he cannot do this himself. I cannot walk anywhere with him as he just crys and refuses to go anywhere. he cannot climb the stairs unless me or my hubby help him. Also he goes into yr 2 at school in September and normally it is upstairs his classroom but they have had to re-allocate it due to his mobility needs. I also have to pick him up out the bath (bear in mind he weighs 7 stone LOL) which social services have agreed to take the bath out and have a stand up shower which should be easier.
He cannot dress or undress himself and he cannot use a knife and fork etc. He also cannot hop,skip or jump.
Now when i filled out the forms which took me ages i sent of all reports that i had from doctors and specialists. I also sent of his statement as well. I called DLA last week as it has now passed the 11 weeks and the person i spoke to says that the decision maker wasn't sure what rate to put him on so they have wrote to his school. My sons teacher has shown me the form and it is excellent what she has wrote.
Has anyone been in a similar situation as me?
Any advice appreciated
Thanks
Replies
- By Tricia
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Re: High Rate Mobility
Mon 21 Jul 2008 13:05Hello Blondie
A few years back I had to reapply for my son's DLA. I mentioned about how his condition affects his daily life and also that he loved to play with fire. Therefore, we had to make sure we had no matches or anything that would start a fire around the house. The gas fire had the fireguard around it all times, no candles and if we had to have any matches or firelighters in the house they had to be kept under lock and key. Also I stated how he would be up and down through the night and how I had to get up to see to him in order to keep him quiet for the rest of the house hold.
Yes they only awarded the middle rate care and low rate mobility. (I was fine about the low rate mobility at the time) Oh almost forgot to mention my son is Autistic and has servear learning disabilities.
So I wrote and asked for an expalination and the reply stated that eventhough they understood my son wakes up through the night my house was safer through the night than through the day. (What planet do these people who make up these decisions live on!) Anyway I wrote back and asked them to explain in detail exactly what they meant and I would give them seven days to reply or i would be sending a copy of the letter to social services and shall be taking legal advise. As I viewed it that it would be classed as neglect should I not of got up through the night to make sure my son and everyone else was safe in the house when he was awake through out the night.
I got it upped to the high rate care with in the week.
Send any letters by recorded delivery so you have a record of them in case the DLA office claim they have not recieved any..
But here is hoping that they do sit up and listen to what you have said first time round and that you get the full award made.
My son is due his to be reviewed this next year before he turns 18 and I am dreading it as he is not getting any easier with his needs and I hear of such a lot of cases when the person turns 18 the DLA either reduce it or decide you no longer need it for the young person.
I wished my son did not need it and was able to live a normal life where he could take control and not have to depend upon others for the rest of his days.
- By crystalriver
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Re: High Rate Mobility
Mon 21 Jul 2008 14:00Hi, I have care of my grandson who is nearly 4. He has been diagnosed with ASD, having 2 of the triads? We are still waiting after many, many months for gentic tests to see if he has fragile x. He goes to a special needs school & has been statemented. He cant talk but uses PECS. He is dispraxic & ataxic & has low muscle tone, when walking he falls to his knees a lot. He also has a heart murmer & has to have antibiotics if he gets a bad cold & cough & we have been told he is never to have piercings or tattoo's. We have just been put up to the high rate of DLA as he has had constant diaorrea since a small baby, he cant eat well & has a lot of sensory issues. (at night we have to put him in a back to front sleepsuit,so he cant get into it.) To go out with him is a real trial, he wants to walk but is constantly falling & gets into terrible rages, banging his head & biting & hitting out at people. We have been turned down for mobilty. They have told us we can try again when he is 5. I have been told on here that we should be able to apply for the mobility but we cant get anywhere with it. I think its the luck of the draw who deals with the application.
- By morello
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Re: High Rate Mobility
Mon 21 Jul 2008 15:56All I can say is good luck, its a case of not what is wrong, but who you know and who handles the appeal. I know somebody who despite losing part of a leg, holds down a job teaching people to drive and before that drove for a living. He walks and works and you wouldnt know there was anything wrong. An MP took the appeal to the tribunal and guess what he got high rate mobility, bought a fast sports car, a motor bike and manages with ease to keep both on the road and hold down a full time job. Now we know what MPs are for dont we and how they make so much "extra" money for their second homes, especially when half of us have problems keeping one maintained and warm in winter.
Need I say anymore
Mo
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By ann31bel
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Re: High Rate Mobility
Mon 21 Jul 2008 21:44Hi Blondie 79
I get higher mobility for Kieran, he has severe epilepsy and SLD.
But I have to reclaim every 4 years it is silly, he is getting no better if anything he is worse!! He can not walk anymore. I get really annoyed because I have friends who get the higher rate indefinetly and there children are truely able to walk and run around but have no sense of danger!!!!!! Which Kieran has not either and he has no speech!
I am hoping the next time I have to re-fill in these forms they will see that there is no improvement and award it to him for longer!!! I would rather have the improvement but can not see that happening!
Take care. Ann xXxXx
