so tired ZZZzzzz

Replies

By fenlander

Re: so tired ZZZzzzz
Sun 29 Jun 2008 19:32

Don't be sorry - it'd be odd if you didn't crack up sometimes, I do often. I bury all the hurt and then sometimes it just blows !
I don't think the non-carers [muggles - to use a Harry Potter term ie non-magic people] have a clue what it is like. Don't try or expect yourself to be perfect or feel guilty if you're not.
I have 2 Autistic sons and if they come out with stuff that hurts I throw it back at them so that they know how it feels - they usually are shocked because they didn't realise- like we expect people to. I then go over it and reassure them that I love them and ask them to reassure me that they love me. I know we shouldn't have to- but that's Autism for you!
It must be really hard on your own. Are there any useful support networks where you live - or is that a silly question?
Karen

By katew

Re: so tired ZZZzzzz
Sun 29 Jun 2008 19:33

hi rachel

believe me it aint no easier having a partner. i care for mine and like you i am always tired, he says he cant see why i should be so tired as i dont do anything! basically what i dont do doesnt get done.

please come here and let off stem it does help.
((((((((hugs))))))))))

kate

By Husband Of Depression Sufferer

Re: so tired ZZZzzzz
Mon 7 Jul 2008 15:04

Hi Rachael
here if you ever want to chat.

R
xx

By Sorcery

Re: so tired ZZZzzzz
Mon 7 Jul 2008 18:37

Hi there Rachel

I know exactly where you're coming from. I too am a single parent of an autistic child (he's 4 in Aug). It is very tiring... I don't have any family or friends to help - not even to give me an hour break for some sleep or socialising some days I have to put him in the nursery, close the gate and go and have a sleep. My only link to the outside world is in chat rooms lol

keep smiling, and chin up honey. Yes there are awful days - but the good days more than make up for it!

I have had to recently have an urgent operation cancelled, as their was noone to look after my son while I have it done and while I recover for 2 days - social services won't help - as far as I know, there is noone out there to help. Even the local churches can't help and I can't afford a child minder. I still need the operation. I still can't have it done. as there is no help for carers who need to go into hospital for any length of time and as far as I know, no support network available for anyone in my situation.

I want to know when the government is going to pull his finger out and help carers such as us all, when we need it most. At the moment, there is nothing there. We do a full time job - no break and very often, for alot of people, no reward. We each face individual , that is to say very different, difficulties and very often we feel like we're banging our head on a brick wall.

Lol this reply wasn't meant to be about me lol it was meant to be about you! What am I like? Still. I feel better for getting that off my chest

Bye for now Rachel (think I've rambled on enough).

Sending you big psychic hugs.

Bright Blessings, Sarah x