Discussion Boards I care for... L.D.N

L.D.N

By debzsanderson

Sat 5 Apr 2008 12:09

hello everyone

My fiance Mark has just found out about a possible new drug to help halt the progression of his MS.The drug is called Low Dose Nartrexate and is used to treat Heroin addicts with withdrawel.The dose advised for ms is around 3 mg a day and for drug addicts it's 300mg (roughly!!).I am really posting this to find out if anyone else has heard of or is actually already using it to treat an illness.In America it has been used to treat MS since 1985 but here it is a new drug and a lot of doctors etc won't prescribe it.

thanks a lot

Debz xx

Replies

By Greebo

Re: L.D.N
Mon 7 Apr 2008 09:44

You mean "low dose naltrexone". I've heard of it being used for some types of ME (since at least the 1990s) and it works v well indeed for some people.

www.lowdosenaltrexone.org

By katew

Re: L.D.N
Mon 7 Apr 2008 15:10

hi debz

im really excited at your post on ldn. we have an appt with neurologist and i cant wait to see what he says. my hubby has ppms so there is not alot of hope for his condition. i would love to know if anyone has benefited from this treatment

much thanks

kate

By debzsanderson

Re: L.D.N
Mon 7 Apr 2008 16:15

hello Kate

I would love to get in contact with you somehow - if the moderator reads this and you agree could we exchange email addresses?

Mark is having a hard time as although he has been diagnosed with secondary progressive ms for 12 years now he has no contact with a nuerologist-we just see the ms nurse, continence nurse, ots and anyone else who can help with things as they happen. LDN is supposed to stop the progression of the symptons and we are even looking at the possibility of having to go private to get it as our gp doesn't seem very keen.
Some websites to look at:
www.lowdosenaltrexone.org - Original site giving lots of info
www.ldnresearchtrust.org - useful for data in UK and doctors who will prescribe if yours won't
www.msrc.co.uk - lots of general info on MS and various therapies
I hope we can get in touch with each other-we are hopefully going to be trying to get Aimspro in the long term -have you heard of that?
www.proventus.org.uk

This is the email address for it - I tell everyone about it because Aimspro is still not licensed yet but it has had such a brilliant result with reversing the damage done by ms.

Good luck and keep in touch

Debz xx

By CHERYL THE PERIL

Re: L.D.N
Tue 8 Apr 2008 10:28

Hi Deb and kate
If you want to get in contact with each other you both need to send an email to michele at the web team asking her to forward your email addys.

If you click on contact us at the top of the page
and then click on web team.

Cheryl x

By debzsanderson

Re: L.D.N
Tue 8 Apr 2008 11:51

thankyou Cheryl - I have emailed the web team and hopefully if Kate reads this and wants to get in otuch she will do the same.

Debz xx

By debzsanderson

Re: L.D.N
Tue 8 Apr 2008 11:58

just an update - Marks doctor has just phoned back and isn't keen on prescribing it but we have persuaded him to take further advice from a consultant befor turning us down - fingers crossed!!

Debz xx

By katew

Re: L.D.N
Tue 8 Apr 2008 12:33

hi debz

i would love you to be able to contact me whenever you like. my email is on my profile. please moderator allow debz access to this to contact me again.

kate

By debzsanderson

Re: L.D.N
Tue 8 Apr 2008 12:44

hi Kate - can you follow the advice that cheryl posted above !!

I emailed Michele via the web team link - we will get it sorted!!

take care

Debz xx

By katew

Re: L.D.N
Tue 8 Apr 2008 13:07

hi debz

i have emailed michele too so hoopefully we can get it sorted

luv

kate xx

Log-in Register

Discussion Boards I care for... L.D.N

Previous discussion: I can't cope any longer (15 replies)
Next discussion: End of life care - help needed and a question or two (6 replies)