Financial/Grant/Funds advice please

Replies

By ann31bel

Re: Financial/Grant/Funds advice please
Fri 7 Mar 2008 23:19

Hi James
Wow you really have your hands full there!
We are in the middle of applying for the Disabled Facility Grant to extend our house to get a downstars bathroom and hoist fitted for our 14 year old. We own our house so i dont understand why social services are not helping you!! Do you have a social worker or Health Visitor for your children, if so they should beable to help you.
Family Fund will help families with disabled children but it is means tested so depends on your earnings. They will supply money for family holidays or washing machine or equipment needed! I t is well worth filling out the forms and try you have nothing to loose!!
How is your 7 year old coping at school? Talk to his teacher and see if they feel he should be ststemented then get your doctor involved and see if they will refer you to an educational physicologist ( not sure how to spell that!! lol)
I would also talk to the H/V or S/W and enquirer about respite care because i think you could do with some, we get respite one weekend out of six which help recharge my batteries.
Do you receive carers allowance i think you and your wife sould beable to claim it!! well i would give it to you.
Lastly i would recommend you make a appointment at the citizens advice because they have very good people working there who knows all the benifits you are entittled too.

Sorry for going on but i how this will help you and do come into the chat room sometime because there all people in there who will have loads more advice.
Take Care.

Ann. XxXxX

By ann31bel

Re: Financial/Grant/Funds advice please
Sat 8 Mar 2008 07:24

Hello James Please check out post List of Funders it might help you in the section . Also check out www.3Hfund.org.uk the give upto £350 towards accomadation for holidays. My wife and i got £200 to help us go on holiday this year .
their nest application period is November for Next Year but phoneing them they will tell you better.. If you would like to get in contact go through web@carers.org and they will help you get in contact.

Jason

By keighleymum

Re: Financial/Grant/Funds advice please
Sat 8 Mar 2008 10:48

Have you seen this
www.asd-forum.org.uk
The asd forum is a good sourse of info and advice on benfits and education.
Have you thought about applying to your local college to see if any childcare students could do work experienc to help you?
Have you looked at
www.moneyexpert.com? and www.ipsea.org.uk
The natioanl autistic society are very good at giving advice too.
In my area we have a carers support organsisation is there someting like it in your area?

By Sparhawk73

Re: Financial/Grant/Funds advice please
Sat 8 Mar 2008 10:54

Hi james Post Number 3 is from me sparhawk73 not ann31bel for some strange reason it has gone up wrong
LOL

Jason Sparhawk73

By Jamers

Re: Financial/Grant/Funds advice please
Sat 8 Mar 2008 11:27

HI thank you all for advice it is nice to get help finally. The school are absolutely rubbish. We do not get told anything what they are doing with him, how he is getting on, they will not statement him as it stands at the moment because he is "too mild". He has come home from school saying he wwas on the lonely bench at school and playing alone and when we asked school they made out that he was lying and that he was not playing alone etc but when the Psychologist was in school he witnessed it and has told them they have to do things differently but they do not tell us anything. WE have today received report form Speech and Language therapist who did assessment on him and she has put in this report that Psychologist has given school things they need to change which is the first we knew about it and she mentions that school have said to therapist that he has been having real trouble in playground hitting others etc yet we do not get told again we were told this was not happening and that he was making it up.

We finally have Multi Discipline meeting next month which should have been in September after me and my wife pushing and pushing as it should have been in September so that will be interesting.

We are really struggling to get help from Social Services as they have said if we were in council house they would move us to bigger house but we are struggling to get them too see how necessary room for carer is. I think they think I am invincible and can cope alone.

By Jamers

Re: Financial/Grant/Funds advice please
Sat 8 Mar 2008 11:31

Can anyone tell me whether we would be able to get funding for climbing frame for garden. I will explain why. My wife cannot go to the park with children as if she gets cold she gets in severe pain and could pass out and she gets tired very easily therefore she missing out on the kids having fun a lot of the time. We would really like to be able to get a climbing frame for the garden so she can sit in the house and watch the children play. Would this be possible do you think?

By kerry

Re: Financial/Grant/Funds advice please
Sun 9 Mar 2008 21:11

Hi James
it sounds like you are being led up the garden path a bit here by all and sundry, like SWs and the school.
You can request a stsatement yourselves.
as for extention- its crap about you having to be in council house- it just depends on whether you have room for extention.
where i lived before in kent we had extention built (even tho very small garden) and we owned out house so thats rubbish for a start.
family fund can provide swing for yopur kids- u will need an assessment which will involve a visit.
i got turned down at first as they said my 2 boys werent affected anough by their disability, but my argument was it for 'disabled children AND THEIR FAMILIES' and we were very affected lol,
and then they agreed.
might take some time tho so the sooner the better to apply.

you know you might be better off to give up your job. it depends i think on what rate your kids/wife ar eon for dla but we had our mortgage paid (well, about five 6ths of it anyway)

there are diff rules if you have diability issues in the family. its not like just making yourself unemployed for the sake of it or whatever.
maybe get your dla rates put up to high rate, by appealing against their decision.
even if you take some trime off for stress for now, to get organised.
but anyway you can take up to 18 weeks unpaid if you have kids under 5 or disabled kids under 18.
and you can take emergency time off too.
look under employment rules for carers, should be on this site somewhere.

dont despair- you could end up being better off.
I feel so sorry for you with your littluns at school tho getting ignored/bullied etc.
the teachers are too worried about their bloody ofsted reports more than the kids.

good luck
kerry

By kerry

Re: Financial/Grant/Funds advice please
Sun 9 Mar 2008 21:19

sorry james i jusr read your posting again and see your wife on high rate dla etc, so you can get your mortgage paid if u give up work and also u can get carers if u bring home less than £95 pw and care for 35 hrs pw or more.

with the mortgage it used to be they paid nowt for first 8 weeks then they paid half for next 10 wks then most of it (about 5 sixths)- used to be called the '8 to 18 rule'.
before i was a uni student and they stopped paying it, they used to pay about 300 of ours and i paid 60 odd every month.

good luck
Kerry