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having a moan!
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By loopy
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Wed 5 Mar 2008 16:11
hi, i am a mother to a 16 year old severely autistic daughter. I went to her school today to discuss some of the transition period that she/we will go through when she comes up to leaving her special school. She can stay there until she is 19. I know its a few years off yet but i am getting very upset and cannot seem to see the wood through the trees at the moment. I want her to go somewhere where she is happy and settled but i dont want her to go far so that we can get to her easily if needs be. Are there any other moms/dads/carers out there who feel just as terrified as i do about their children going to day care or residential care?? I know its early days , but i feel that no one can look after her the way that we do at home. But, on the same token, me and my OH will need time to do our things togeather too. I am really scared about all of this. Also , she has a really bad weight problem, does anyone know of any appetite restricting drugs that could be prescribed to her? or of any herbal remedies that might work?
thanks for reading this post
lisa xx
Replies
- By julie-ann
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Re: having a moan!
Thu 6 Mar 2008 14:33hi i have a son 8 with severely autisum and learnin prob one big one cant speak they are goin to take down a few spcial school and build tham by main stream school my son wud not cope with that. some time he comes home from school in a right mess they wud not do this 2 ther own so y special kids ive looked at respite and didnt like itit was horrible its hard at home so me and my hub will get on with it . u take care lisa big hugs 2 u all xxxxxxxxxxxxxx
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By ann31bel
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Re: having a moan!
Thu 6 Mar 2008 16:08Hi Loopy
I know what you are going though. Kieran is 15 in April and at his last reveiw the connection people were there discussing the transition stages. Well it went over my head and flew away!!! I have no doubt in my mind that Kieran will be staying home here with us. Well will probably use day centres so k ieran can be stimulated and get away from me for a few hours a day. I know it is important for my husband and me to have time alone together so we will continue with respite care one weekend a month i hope but we have to wait a see.
I just feel that as you we are the best people to look after kieran and feel that maybe others will not be so loving. It is all so frightening.
Take care and big hugs.
Ann xXxXx
- By kerry
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Re: having a moan!
Thu 6 Mar 2008 22:10hi lisa, think youre doing the right thing by thinking about transitions now.
it is hard tho- i know i think about it already and the boys are only 9 and 10!
but at least we will get to choose where they go if we sort it out before we are incapacitated or dead ourselves!
the campphill communities look good, but theyre all so far from us and i worry already about them being so far and maybe missing us (or worse, not missing us lol)
as for the weight- well you could try getting a wii- we got one 2nd hand off ebay and although the boys have little coordination, they do play that and its good for george as hes a lazy bugger and consequently has a weight problem.
sid eats the same (like, everything he can get his hands on) but hes more active so he gets away with it.otherwise maybe ask in ahealth food shop about any thing that might help charlottes weight.
Kerry
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