Discussion Boards I care for...
The Bleak Future
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By debzsanderson
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Sun 2 Mar 2008 20:32
First of all I would like to say that I hope no-one finds this offensive or upsetting..................
My caring, loving fiance is becoming more and more withdrawn from life and I'm so scared. He means the world to me but I'm scared that he is giving up on himself/life because of severe fatigue that has made all the other side effects of his MS a lot harder to live with.
He is often quite angry with himself and now hasn't been out since November (he stopped driving due to being unsafe). We have been offered Direct Payments but it's a "catch 22" as he doesn't have the energy to be able to go out and enjoy doing outside of home. If it wasn't for the fatigue ife would be so much easier but any pills he has tried don't work or have bad side effects.
I don't really get anyone to chat to - except I get a monthly call from the carers association but Mark is always in ear shot so I have to be careful what I say.........
Replies
- By loopy
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Re: The Bleak Future
Sun 2 Mar 2008 20:45well you can always come here and chat or just vent your feelings. My daughter actually strung two words togeather today! pity it was "oh shit"........
made us laugh though because she is still very much in baby language even though she is 16 years old. At least she said something though!!
- By goddess57
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Re: The Bleak Future
Mon 10 Mar 2008 12:12Do you think if he takes up a hobbie something he likes doing from home would help him.You could still get the Direct Payments to help someone look after him in the home to,not just for going out.Does he get all the benefits hes intitled to has well.Its very hard to live with someone with M,S.I know for my husband has this condition too ,good luck and all the best. goddess.