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hiding food
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By loopy
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Tue 29 Jan 2008 08:52
does anyone else have the same problem that i have? I have a 16 year old autistic daughter who i actually have to hide food away from her. she would just eat and eat if i let her. she has a big weight problem as it is. I have 2 other kids so if i get crisps and stuff for them for their lunchboxes i have to lock them away!! I limit her to what she can have and never deny her anything, but she has to have it in moderation. She has almighty tantrums, pulls her hair, bites herself, slaps herself and occasionally bangs her head up the wall. I have tried her with fruit and she wont touch it. She physically recoils away from touching it. She eats lots of fresh veg though which is a good thing. she even eats asparagus!
I am so tired today because she wakes in the small hours of the morning and cannot be left on her own. She has no danger sense whatsoever and i constantly have to watch her movements. She tries to touch hot things on the stove and is forever trying to touch hot taps. she repeats words over and over again (i have to be careful what i say...
) no swearing that is!!!
she flaps her hands and flicks her fingers constantly and always rocks from side to side. she whispers to her self and whispers into her hands, giggling sometimes at what she says. (it doesnt make sense what she says though) but apart from all that she is my big cuddly teddy bear and we all adore her. I was just wondering if anybody out there had an autistic child who can relate with me about the food issue?
cheers, Lisa
Replies
- By morello
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Re: hiding food
Tue 29 Jan 2008 11:10I have a similar problem and mine is also with cleaning products etc. Nothing can change this obsession, and well if you can imagine the places I have to hide things and then can never find them myself. The only difference is the violence is usually directed at me. I look as if I am a battered woman most days, and it gets you down, especially when there is no help or support from the areas there should be. You have to muddle on and be grateful she doesnt attack you, and sad as it is that is the nature of some autistic people.
Mo
- By trusty
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Re: hiding food
Tue 29 Jan 2008 12:45hi loopy ,
I can identify with what you are saying but am lucky because my lad is 12 but hyperactive so he never gains excess weight . Some medications can be the cause of of overeating especially anti psychotics like respideral . I have recently got doctors to decrease his medication because i felt it was being counter productive and causing agitation and his appetite decreased and his behaviour slight improved but definitely no worse . I know too from my son he does alot of behaviuors for attention and foods with additives send him crazy as does bananas . I had him on gluten free diet for years in belief it was helping his autism and constipation but trialled him last summer off it and yes he was very constipated but it settled now . My lad does kick off if he does get what he wants when he wants it but i do try my best to firm with him and it seems to work in the long run if you stick it out . As the saying goes ITS WHEN YOU ARE HARDEST HIT YOU MUST NOT GIVE UP , FOR YOU MIGHT HAVE WON IF YOU HAD STUCK IT OUT .So wish you all the very best taking each day as it comes as I do .
- By tired lady
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Re: hiding food
Tue 29 Jan 2008 16:19Hi all,
Im a mother of three autistic children, ages 3,5 and 7.
All these problems I have to deal with.
But i find the best way to deal with this is by saying no with a Pec picture or photograph. Covered by a see through no entry sign. the no entry sign has to be clear so the child or adult can see the picture of what he/she is being told no too.
Of course they will not know what it means to begin with. but after a a while the visual prompt reminds them they cant have what they want.
If they understand what the sign means thay will at first pull it down. If a dangerous product or situation then still keep it locked away during this time.www.do2learn.com
has alot of pictures from food to no hitting. Some actually have the no entry sign printed on them.
- By kerry
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Re: hiding food
Tue 29 Jan 2008 23:46Hi Loopy/Lisa
Kerry here.
we also have to hide food from my 16 yr old daughter as she eats everythingin the house ...
One difference is that she is not fragile X or autistic lol, just a pain in the arris!However my boys are the same, Sid helps himself to anything he can reach and altho george doesnt (he is too lazy to get whatever he wants) sid also gets stuff for him (he thinks he being helpful!)
my toaster wouldnt work recently. checked the switch... no that was fine... rattled it a bit... out came a lump of ham and some burnt melted cheese.
he was trying to make a cheese and ham toastie!
cant explaint to him 'dont touch the toaster/kettle/over etc' cos he just lose the plot and screams the house down lashing out.The same way couldnt explain its not good to cuddle the fish!
but he likes to kill them so he can watch them flush down the bog.we have 4 cats and a german shepherd already but now sid wants a giraffe.
we have give up on the fish for a bit.
(and hidden the ham and cheese
)I dunno, your cant live with em and im told its illegal to push em down the stairs....
Kerry
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By loopy
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Re: hiding food
Wed 30 Jan 2008 08:53hi kerry,
if you want to have a bit of a giggle then go to www.funnyordie.com , scroll down and click on the "landlord" video. its hilarious!
- By kerry
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Re: hiding food
Wed 30 Jan 2008 09:07Hi Loopy/Lisa,
I did go on that but the problem is I have no speakers so dont hear it.
Looked funny tho! lol.
How are you today? tired i bet if you were up in the night with 16yr old.My 16 yr old (the non disabled but daft as a brush) decided to go to my other daughters (aged 19) at her uni digs the other nite and dye her hair with some random unknown brand of caustic soda type hair dye...
the result: a rash, burnt head, hair loss and worsed of all in her mind, it went ginger and not blond lol.
Me on phone to bloody NHS direct at midnight, panicking, thinking anapalytic shock (spelt wrong i know)
However she was ok, and learnt her lesson i hope.However we dont have that luxury with our other kids do we?
they dont learn...
Sid burnt himself the other night trying to help by stirring a pan on the stove even tho i told him over and over dont touch babe... he does what he want... i turn my back... he gets burnt foot and loses the plot with me, cos its my fault lol.ho hum....
Kerry
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By loopy
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Re: hiding food
Wed 30 Jan 2008 14:11hi kerry, i am not too bad today cos charlotte was in respite last night so i got a nights sleep! Shes back tonight though, so i might be singing a different tune in the morning! feeling a bit down today. Money is tight and i feel a bit guilty in as much as i wish i could contribute a bit more than i do. I have a little part time job that doesnt affect my carers allowance but its still crap money really. Hubby looking for a better paid job. oh well, such is life i suppose!! I am looking forward to friday cos hubby is out with his mates and i am treating myself to a bottle of wine!
I might be in the chat room if you are there.
- By kerry
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Re: hiding food
Wed 30 Jan 2008 19:14well loopy lisa,
i think youre living up to your screen name if you feel you dont contribute enough! (loopy!)you are bringing up your disabled daughter and other children? is that right? and also working part time outside the home.
reckon that enough to be going on with eh!
my boys had respite the weekend, my girls were both out and me and him were gonna go out for a meal or something equally wild, but we just didnt have the enrgy lol.
we got a takeaway and a dvd!
but then my stupid dog was barking all night, really restless, so i was up til 5am with him then up at 7.30am for uni.
I could have cried lol.
its nice to have something for yourself tho dont you think. like your job outside the home. me its university.
altho its amazingly hard (especially at my age as me brain cells have mostly gone awol)
it is time when im just Kerry, not the boys mum or the girls mum or a wife or even a carer etc.mind you i educate everyone, even the lecturers, at every opportunity about being a carer and having disabled kids!!!!
ive never been in the chat room, i might give it a go friday time allowing of course, and depending if my 16 yr old is here or out with the current beau..... she is obsessed with MSN! like her life depends on it.maybe speak then......
Kerry
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By loopy
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Re: hiding food
Wed 30 Jan 2008 21:30kerry,
my 18 year old back in my good books now. He's off out clubbing with his mates tonight so god knows what state he will come home in (been there, done that, got the t-shirt...lol). My youngest is listening to her rock music. Into AC/DC, Led Zepplin, Thunder, Linkin Park and just generally doing her own thing in her bedroom. Charlotte all tucked up in bed bless her. I am just chilling out a bit and also watching "the running man" with arnie whats his name in it (i cant spell his last name so i will call him "terminator man"...lol)
cheers...lisa..
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