bad day...........

Replies

By loopy

Re: bad day...........
Sat 19 Jan 2008 20:44

dont feel bad, we all feel like this at times. you are doing a fantastic job and i am sure that your other half really appreciates and loves you for it.

By babs50

Re: bad day...........
Sat 19 Jan 2008 21:16

hey debz . sometimes just writing down your feelings is a release in its self, dont feel guilty + uve always got a friend on this site whos probably felt the same way at sometime. we cant smile all the time , tomorrows another day + the nights will be getting lighter soon . we ll all feel better with abit of sunshine love barbara xxx

By marie66

Re: bad day...........
Sun 20 Jan 2008 00:27

Aw Debs, (((Hugs))) for you!
It's never easy is it?

Come here anytime and don't worry as we all understand that when things get tough you need somewhere to chat - we all do!

God bless,
marie x

By chenrezig

Re: bad day...........
Sun 20 Jan 2008 10:04

Dear Debs,

My "partner" is my Dad. I know just how you feel as he has severe mobility problems and relies on me to get him to the loo etc. Due to his Parkinson-like symptoms he can't smile and finds it hard to give me a hug. I know that like my Dad your other half really appreciates what you do for him

We all feel guilty at some time, and I find places like the chatroom here are a real blessing when things get rough
Please don't feel guilty at all, if you don't feel like posting why not try getting yourself a notebook and write it out so you get it out of your system that way - that's what I do. I too use my PC and bedroom as an escape, or failing that, 5 mins in the kitchen with a big mug of tea with a biccy or two - it might not seem much to some people but its so important to get a bt of you time even if its only just a few minutes.

Hugs and bless, Liz

By cracker

Re: bad day...........
Sun 20 Jan 2008 15:03

Hello Debs. I do understand just how you are feeling.My hubby has been in a wheelchair for the past twelve years.He also has multiple illnesses and our home is like the store room in a pharmacy. Some days I want to scream,as I am trapped as much as he is,and I think to myself,I am not ill and my life is passing me by. Then I look at him and think how active and strong he was when we first married, I see how much in life he has lost and that must be so hard for him to accept. Sometimes he gets very depressed because he would love us to just get up and go out for the day without it being some kind of military operation,as we need to take all sorts of aids with us,apart from the wheelchair.I sometimes feel like a pack horse lol. Saying all that,I know that when I lose him,I will feel like my life is over,as this life is the only one I know. Like most of us on here I have no confidence in myself at all,so starting again on my own does not bear thinking about. I am just grateful that there are sites like this so we can support each other in both good and bad times. The worst feeling is that you are alone,it's good to know that you are not.
All the best to you.

By laee

Re: bad day...........
Sun 20 Jan 2008 16:09

debz i feel so sorry for you my situation with joyce has been the same for some years now and i the end it has brought me to the edge of my sanity.
I dont know what the answer to your situation is i can only offer advise, i know with joyce i left it so long that my own health suffered before i did what i should have long ago.
If you need any help at all i know they people on this site will give it they are nice people.
I hope you can sit down take a break and decide your path.
Carering for someone is the most rewarding thing in the world but you have to have me time also or it can be the most tiring.

By debzsanderson

Re: bad day...........
Sun 20 Jan 2008 16:28

I can't thank everyone enough for there support and advice - just knowing someone else knows how your feeling helps so much.I am picking up again today and feel a lot better. I don't know why I feel like this but tomorrow I'm getting on the phone to the wheelchair people who are assessing Mark on Tuesday for a new chair. I'm going to tell them how bad things are so they hopefully will bring a more suitable normal size wheelchair (Mark is 6" 4 and has a private higher lightweight chair).

I had a long chat to Marks mum to Marks mum which helped and did a bit of "online retail therapy" !!

I'll hopefuuly be in the chat room tonight thankyou everyone

Debbie xx

By jorum

Re: bad day...........
Mon 21 Jan 2008 08:50

Hi there this is Jorum, I am in the same situation as you and understand how you feel and I at times feel down. I am fairly new to this site and find that the people are lovely and the help. My husband has ms for the last 10 years and is also in a wheelchair and full hoist, I take each day as it comes and like you have some good and some bad. I hope to see you in the chat room sometime and we can talk,

Chin up we are all her to support you

By debzsanderson

Re: bad day...........
Mon 21 Jan 2008 16:22

ok - thought the worse was over then last night was so much worse...............
I spent from about 3am turning him because he had no strength to turn over then at around 5.30am he needed the toilet and was unable to sit up let alone get out of bed. I got him in his chair around 6.30 but unfortunately he had already wet the bed by this stage. I sorted him out then decided to stay up as I knew Mark would sleep better if he could stretch out and I couldn't have got back to sleep. I rang the ms nurse (she did a home visit 2 weeks ago and was really helpful) at 9am and cried my eyes out but she really helped. By mid afternoon she had sorted out a social worker assessment for us both, got an OT referrral sorted and has promised to help us sort out a temporary new wheelchair.
I am so tired now it's unbelievable and if the truth be told I fantasize about just getting out and going to see my parents (problem is they are 350 miles away........).
I'm sorry to keep moaning but I just feel so low right now and I know you all understand to a degree what it's like to be like this.

Debbie xx

By jorum

Re: bad day...........
Tue 22 Jan 2008 00:50

hey Debbie, I hope to get on the chat room early in the evening and try to talk with you as my hubby has ms like I said and I may be able to assist you for a shoulder to cry on, he is high care and is wheelchair bound, I too have to reposition him in bed as he is unable to do that himself he too has accidents in the bed and what I did was get a drop sheet (for painting) and put that on the bed to save the mattress. I do hope that I can assist you as we are going through the same thing and I may be able to give you ideas to help.