Hello new here

Replies

By westener1

Re: Hello new here
Mon 19 Nov 2007 13:42

hi jackie welcome i agree although at times being a carer can be very frustrating it can be rewarding in knowing we are doing our level best for our loved ones and more.
i too saw this morning,i have been a member of this site for a while,and though i am no longer a carer owing to the death of my hubby i still like to think that through my experiences i can still offer sound advice and support. take care

By iggibear

Re: Hello new here
Mon 19 Nov 2007 14:35

hello jakerleen
my name is craig my wife Janette has a condition called mixed conective tissue disease which has no cure yet !
janette needs a lot of care and love as she suffers from a lot of pain due to the condition it can be very hard on use at times so i can under stand as best as i can wot you must be going through to look after you self and your family.
we are all here to help each other as we dont get much support for goverment welcome abort love & peace to you & your family craig

By princess140204

Re: Hello new here
Tue 20 Nov 2007 11:58

hello i too am new here i care for my 6 yr old son who has severe excema and asthma so bad he has bandages from head to toe and cannot walk on a bad day, also i care for my husband who has a curviture of the spine, aspergillis, asthma, arthritis and a bad knee and pelvis due to a motorbike accident about 20 years ago. i find it hard and now suffer from panic attacks if i go out alone as i am always at home caring i get very depressed. so hopefully talking to everyone here will help. I know how you feel and you know how i feel we are all in the same boat!

By jakerleen

Re: Hello new here
Wed 21 Nov 2007 21:55

Thanks for the replies, it is so much appreciated.

It's true we are all in the same boat and it's good to be with people who don't judge us for not getting "a proper job", or that look down their noses at us for being on benefits. I find it so hard when I am treated as if this is all I am good for ......... that sounds terrible to say, because I wouldn't be happy having anyone else care for Dave ..... but I do have a brain in my head and it's a fairly god one to be honest. The thing is I not only need, but I want to be with my other half, he gets paranoid and upset if he has to deal with strangers. When I worked right after we had Dominic he got so depressed he attempted suicide, I could never forgive myself if anything happened to him just because I put my career first. .

Very true Craig I think the government are very god at syaing "what a wonderful job carer's do" as long as it doesn't mean putting their hands too far into their pockets. £87 bn is an amazing figure to be saving this country and the fun bit that's not taken into consideration with carers allowance is that many of us are on benefits before claiming it, to take it back off income support etc and replace it with a premium that's only half the amount of carers allowance is a con. In my opinion our love and commitment is taken advantage of by those who make the rules. Don't tell anyone but they get me cheap and pay me well at the same time, mainly because I love Dave so much I would happily go along caring for him for free to make sure he stays with me and the kids.

I shall now get off my soapbox lol. Just I've had a day of it. Had a meeting at the school and I used shorthand to take notes, everyone looked amazed at me and said "How come you do that?" It struck me that perhaps I am seen as some sort of dunce, if they could see my qualifications they'd be shocked, and it hurts that I am thought of this way.

Jackie xx