Hospitalisation of a Person with a severe learning disability

Replies

By Mags

Re: Hospitalisation of a Person with a severe learning disability
Fri 2 Feb 2007 20:37

Hello, I have been in that position.
Maybe the trust will pass on my email address for you.
Hugs Mags x x

By eileen

Re: Hospitalisation of a Person with a severe learning disability
Fri 2 Feb 2007 22:26

ive been there as wellsame wauting to hear eileen

By Lynne D

Re: Hospitalisation of a Person with a severe learning disability
Fri 2 Feb 2007 23:11

My son was in hospital last year, I requested that a carer stayed with him. Because of his speech and language difficulties he would not have been able to communicate with the staff, also they would not know his "triggers" for when he became distressed. There was no problems with carers staying with him.

By georgie/c

Re: Hospitalisation of a Person with a severe learning disability
Sat 3 Feb 2007 18:04

Thank you to the carers that responded to the above issue maybe i put it wrong, as i meant the unpaid family carer having to stay with the disabled person.

Dont al PCT have a duty of care to all patients in there care, should there not be a learning disability team in every PCT to advise nursing staff and ask if the person has an ELP - it is a document stating what has to be done for the disabled patient from the time the get up of a morning to the time they go to bed, and covers all medication issues for the papient

Family carers have enough to be doing keeping a home going and looking after other family members.
I have heard of carers sleeping in chairs carrying on with there caring roll while there son or daughter is hospitalised.

With all these white papers & green papers i am sure there is a salution to thi issue, hope i have got it right this time.

By eileen

Re: Hospitalisation of a Person with a severe learning disability
Sat 3 Feb 2007 18:42

my son and i spent amonth in hospital last year i slept on chairs then when we moved to the mens ward i got a fold up bed down the side of dannys eileen

By Laurianne

Re: Hospitalisation of a Person with a severe learning disability
Sat 3 Feb 2007 18:44

Hi,
My husband who I care for fulltime does not have a learning disability but he has epilepsy. This means amongst other things he has problems with his short term memory. 4 years ago he had to go into hospital for a gall bladder operation.

After a few hours on the first day I received a phonecall from the ward sister. She said that they could not cope with his seizures and the fact that he did not remember what he had been told. Their workload was already too heavy and they did not have the time to care for him.

I was requested to come in and look after him from the time he woke up until he went to sleep at night. They also wished me to be 'on call' for the night staff should they have difficulty coping with him. This went on for the 7 days he was in and involved me making a round trip of 30 miles each day.

I did as they suggested out of love and concern for my husband but feel that it is ludicrous situation. Provision should be made for anyone going into hospital who has comprehension difficulties and who requires extra care.

By Jean B

Re: Hospitalisation of a Person with a severe learning disability
Sat 3 Feb 2007 21:23

my daughter has just been transferred from childrens hospital to adult hospital and l have still to find out my postion as l have always stayed with her when she is in hospital l dont know the set up in adult hospitals and she is due to go in for more tests soon could anyone give me some info she could not stay on her own and she would nopt be able to make her self understood

By eileen

Re: Hospitalisation of a Person with a severe learning disability
Sat 3 Feb 2007 21:31

just stay with her again diffrent hospitals treat you diffrenly i just hope yours will understand and treat you both well and eveything goes as you want

By Lynn

Re: Hospitalisation of a Person with a severe learning disability
Sat 3 Feb 2007 22:00

Jean - contact your local PALS at the hospital and ask for a copy of the 'Carers Policy'. All hospitals have one but don't like to advertise the fact.

By Lynne D

Re: Hospitalisation of a Person with a severe learning disability
Sun 4 Feb 2007 00:34

Georgiec, I am my sons unpaid carer, however i am the only relative he has, because i am in a wheelchair myself it would be impossible for me to stay with him as the nursing staff would therefore also have me to see to. the carer had to nap on a chair, although it did mean i myself was without care all night.