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  1. what good are petitions and writing to your mps?

    Posted by doug_9144 at Mon Sep 10, 2012 1:06 pm

    you know over the years we have had people asking us to sign
    petitions or writing to your mps and such but when you get right
    down it its been a waste of time all this hooha about trying to
    stop or slow down the government on their ideas about cutting this and that
    has not done anything for carers its just put more pressure on us
    from next year DLA will be stopped housing benefit will be stopped
    we will have to pay rent so what was the point of fighting when it boils
    down to it carers will be on their own and always will be i for one
    am dreading next year. when i go to bed at night i pray that i never wake up
    or when i do wake up i hope its a dream but no such luck
    doug

  2. Re: what good are petitions and writing to your mps?

    Posted by swissmiss at Tue Sep 11, 2012 9:21 pm

    Hi Doug
    You are right...except it cant get as bad as they promise...can it?? Try and not worry..it will all come out in the wash as my Nan used to say. You sound really down though...not your old chirpy glass half full chappie? How are things with you and Noreen?
    (((HUGS))))
    Karen :)

  3. Re: what good are petitions and writing to your mps?

    Posted by Simone at Tue Sep 11, 2012 11:53 pm

    Hi Dough.
    I feel very much like you. We have all fought for our rights but actually government is not listening. I too have written to so many MP's. I have written to so many and signed so many petitions and I am still not getting any help but we mustn't give up as that one door may just open one day.I can truly understand how you feel as I have felt the same so often.........but something inside me keeps telling me not to give up. If I did I would die.............

  4. Re: what good are petitions and writing to your mps?

    Posted by paulessex at Wed Sep 12, 2012 4:06 pm

    let just hope that in the next election people remember this lot and kick them out, but then again there are a lot of Rich and well off people who have been made better off by this lot. so they won't change how they vote.

    Greed builds more greed

    I still don't get people who moan and say they are worse off with the cuts Yet would still vote for this lot.

  5. Re: what good are petitions and writing to your mps?

    Posted by swissmiss at Wed Sep 12, 2012 4:23 pm

    ...and yet it wasnt good under Labour either! :cry:

  6. Re: what good are petitions and writing to your mps?

    Posted by doug_9144 at Wed Sep 12, 2012 4:49 pm

    hey karen how are you i'm not in a very good place at the moment
    and neither is noreen she has had to be put on full on morphine
    tablets she in a lot of pain more than she used to be docs are
    monitering her pain relief for now all the pain is coming from
    her back they suspect it's the osteoarthritis in the spine causing it
    to begin with we thought it might have been her tremors but the pain
    she has is traveling from back to front hopefully they can sort the pain
    doug xx

  7. Re: what good are petitions and writing to your mps?

    Posted by swissmiss at Wed Sep 12, 2012 6:30 pm

    Hi Doug
    I think of you both often and hold you both up as an example of the power of human spirit and endurance against adversity. I hope you are still getting enough support from carers? I am sorry to hear that Noreen is suffering so much more pain. Does she have a specialist pain doctor assessing and helping? How are you Doug? How much have you managed to come back from that stroke? Do you still have lovely neighbours to help?
    I have turned a corner in my grieving for Neil..it will be two years in October and the last two years have been a void of pain for us! He is still close with me in spirit which is amazing though. :-) ...and free from his own pain for which i am grateful.I have survived and Angus has learned to endure as well as we still battle for services. If I push hard they try and suggest I need a referral for psychiatric services rather than examine their own offerings and failings. Today I have had a long telephone conversation with the clinical director of LD mental health services because they had the bloody cheek to send me a psychiatric referral on Monday...i feel i got my point across and we reached a better understanding but what will come of it is anyone elses guess!?
    Have you heard from Hal how he is getting on in Plymouth?
    Take care
    ((((BIG HUGS)))), healing prayers for you both and lots of love,
    Karen xx :):)

  8. Re: what good are petitions and writing to your mps?

    Posted by ena1 at Wed Sep 12, 2012 7:55 pm

    I feel exactly the same as Doug at the moment. I've found that petitions are just lists of names that end up in a bin or in a trash folder of a computer somewhere, we had an MP push some benefits through when we were waiting for a decision for months, other than that nothing. These laws go through regardless, we've already had housing benefit stopped, we received a letter today saying that council tax benefit will stop next year & inviting us to a consultation about it (as if it will make any difference :roll: ) We've also had the forms form ATOS about ESA so I've been filling that in this afternoon. Every day I dread the post coming & seeing what they're doing next, I feel like I'm just existing at the moment with a bleak future, nothing to look forward to, glad to go to bed & lie in the dark, wish I didn't have to get up. What sort of existence is this for us?

    Does anyone know if ATOS does home visits for those who they think may have difficulty getting to an assessment?

  9. Re: what good are petitions and writing to your mps?

    Posted by swissmiss at Wed Sep 12, 2012 11:01 pm

    Yes they do home visits in exceptional circumstances Ena but I have found with ATOS that you get conflicting answers every time you ask a question! If you dont turn up to the interview they usually get the Jobcentre to ring you...Angus refused to go and justify his disability and they gave in for now so he is still on IB! Ali I am in the middle of trying to get a medical letter which they might accept, if not they will come and see him at home they said. So much paperwork all the time......... :x

  10. Re: what good are petitions and writing to your mps?

    Posted by Simone at Sat Apr 06, 2013 10:29 pm

    It is unafir that they are putting so much stress on carers. It is getting worse as they talk about welfare in the newspapers. I feel the hate. I am not on benefits but you never know when you get into that position yourself. It is wrong what they are doing with DLA.
    How can they expect someone to support themselves if they are on job seekers allowance. Ok some may be capable of working whilst those with say autism, asperger, down syndrome or even my daughter who has no worth while exams. May never get into well paid employment.
    They are not willing to give her the help she needs and none of them want to listen.
    When I wrote to an Mp he quoted how much they were spending but in so many years I have seen less help coming and no help coming from the money he stated was there to help. I am pretty disgusted with the current government and the current assessments. It is no longer on your disability but if you can score enough points on the tests. It is wrong to take away that DLA money from so many sick and disabled.
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