we have had a carers assessament and according to our social work (we live in cumbernauld) they says we are not geting anymore services to help with our 2 children who has a 9q34.3 deletion syndrome now known as kleefstra syndrome. this is basically causing there developmental delay. so its a case of get on with it. both boys each are getting sense scotland 4 hours each and that is all we have which is better than nothing, we have to use them to get time off, now there looking at what benefits the kids what about the people that look after them 24/7 when these people only have them for 4 hours a session.