Yesterday when I was out with my boys I started with the right side of my face twitching and gradually a numbness which then spread down my right arm and I felt sick and dizzy......ended up in an ambulance with Angus and Ali following in our car. It lasted for about 5 hours...not as severe as can be but very worrying. Tomorrow I am going to the follow up clinic..I rang at lunchtime to see that A&E had passed the referral over and am glad I did cos they hadnt!!
I looked at my emails this morning and there was a reply from the SS woman who came to see me last week. Respite on offer at the council place ...was £170 a night but they want £300 a night now because they have cut staff and would have to engage agency night staff for Ali! No apology or explanation. The HUB day service which we had to abandon because they said they wouldnt stop him hitting himself if he went they said they had done a risk assessment which is rubbish because they havent and that they would use restraint if necessary..its too late now because all their messing around upset Ali. Angus and I visited on our own to assess before we took him to look so that he wouldnt be messed around and then we went with Ali and had a good visit...was all set up to start and they backtracked on promises so now its impossible to get him to want to go...he refuses...and they have officially changed their minds which makes it look as though we are refusing and being difficult! All mind games.
Ena was right...why did I bother. They want to destroy my self esteem, take away my sanity and make me prostitute myself to them for help...seem to remember the Nazis used these tactics didnt they???
I will die before I deal with SS because if I do I will definitely fall apart. Anyway Ali now refuses to have anything to do with SS. It was a struggle to persuade him last year given that his Dad said he desperately needed respite and we never got it. Now hes definitely had his fill of them as have Angus and myself.
I will start the A-Z of words to describe SS......AMORAL!
Now to take my Holy Basil and not get worked up!
Karen x
I looked at my emails this morning and there was a reply from the SS woman who came to see me last week. Respite on offer at the council place ...was £170 a night but they want £300 a night now because they have cut staff and would have to engage agency night staff for Ali! No apology or explanation. The HUB day service which we had to abandon because they said they wouldnt stop him hitting himself if he went they said they had done a risk assessment which is rubbish because they havent and that they would use restraint if necessary..its too late now because all their messing around upset Ali. Angus and I visited on our own to assess before we took him to look so that he wouldnt be messed around and then we went with Ali and had a good visit...was all set up to start and they backtracked on promises so now its impossible to get him to want to go...he refuses...and they have officially changed their minds which makes it look as though we are refusing and being difficult! All mind games.
Ena was right...why did I bother. They want to destroy my self esteem, take away my sanity and make me prostitute myself to them for help...seem to remember the Nazis used these tactics didnt they???
I will die before I deal with SS because if I do I will definitely fall apart. Anyway Ali now refuses to have anything to do with SS. It was a struggle to persuade him last year given that his Dad said he desperately needed respite and we never got it. Now hes definitely had his fill of them as have Angus and myself.
I will start the A-Z of words to describe SS......AMORAL!
Now to take my Holy Basil and not get worked up!
Karen x
