Today I would say that the whole concepy of "getting a little help" is as far from a possible reality as is possible! If I cannot carry on then I shall simply have to give up and pass on living. Just hope my capacity to live and care which is now down to 10% max continues as noone cares enough to make a difference and the harder I fight for help the more oppressive the so called caring services become.
As I have had to take myself and my sons to A&E and fight to get help when my eldest [who himself has Aspergers for which there is no support] and I lose the capacity to care for my youngest severely Autistic son...against the force of non-caring which is the NHS and now they are accusing me of being aggressive...which I am not...I never shout or swear...sometimes I cry when they are aggressive to me...but I have had to refuse to "go away" when they have tried to throw me out and I have had to ask NHS staff to back off from verbally abusing us....today i got a letter awarding me a yellow card and threatening to ban me from attending the hospital...what do I have left? Where do i go now?
I called the community WPC who has supported us when we have been unable to cope due to failure and neglect by SS and the NHS...she said that they also get a rude response whenever they go to A&E so she has taken my letter from them and is going to confront the consultant manager who sent it.
The fact is that we are the lowest echelon of society. My son would once have been kicked in the gutter..then as society tidied things up shoved in an asylum...then when society liked to think it was more caring sent back home and then when they managed to develop a system as SS are expert at left without any support to the care of his parents and now...reality...having lost my darling husband under the strain of caring alone combined with his own mental health weakness which was as a result of his obnoxious teacher parents not understanding him and bullying and abusing and humiliating him[as many of you know he finally succeeded in taking his own life by stabbing himself to death in bed next to me while I slept, having paralysed himself by jumping off a bridge 3 years earlier]...they are leaving me to suffer under the full weight of an evil system which employs arseholes to fail and hurt people. They supply them with every protection and people like us with none.
Went to our GP again for my sons ingrowing toenails...he picks them as part of his Autism. The atmosphere is cold since the GPs refused to help a month ago when I said I couldnt cope without help. On the notice board was a newspaper cutting..."Why GP receptionists are grumpy!"...apparently it is because they suffer from emotional burnout...funny they seem devoid of feelings and emotions to me! What about the patients who are left in pain and suffering because of NHS failure????
Minor problem that but suffice to say that he has antibiotics and I will have to pay for a private chiropodist to repair them as the NHS dont consider that urgent and he would be on antibiotics for a year sufferring with them weeping otherwise!
We are off for a walk now in an effort to keep ourselves living and not going under with the feelings of pain and despair.
Karen x
As I have had to take myself and my sons to A&E and fight to get help when my eldest [who himself has Aspergers for which there is no support] and I lose the capacity to care for my youngest severely Autistic son...against the force of non-caring which is the NHS and now they are accusing me of being aggressive...which I am not...I never shout or swear...sometimes I cry when they are aggressive to me...but I have had to refuse to "go away" when they have tried to throw me out and I have had to ask NHS staff to back off from verbally abusing us....today i got a letter awarding me a yellow card and threatening to ban me from attending the hospital...what do I have left? Where do i go now?
I called the community WPC who has supported us when we have been unable to cope due to failure and neglect by SS and the NHS...she said that they also get a rude response whenever they go to A&E so she has taken my letter from them and is going to confront the consultant manager who sent it.
The fact is that we are the lowest echelon of society. My son would once have been kicked in the gutter..then as society tidied things up shoved in an asylum...then when society liked to think it was more caring sent back home and then when they managed to develop a system as SS are expert at left without any support to the care of his parents and now...reality...having lost my darling husband under the strain of caring alone combined with his own mental health weakness which was as a result of his obnoxious teacher parents not understanding him and bullying and abusing and humiliating him[as many of you know he finally succeeded in taking his own life by stabbing himself to death in bed next to me while I slept, having paralysed himself by jumping off a bridge 3 years earlier]...they are leaving me to suffer under the full weight of an evil system which employs arseholes to fail and hurt people. They supply them with every protection and people like us with none.
Went to our GP again for my sons ingrowing toenails...he picks them as part of his Autism. The atmosphere is cold since the GPs refused to help a month ago when I said I couldnt cope without help. On the notice board was a newspaper cutting..."Why GP receptionists are grumpy!"...apparently it is because they suffer from emotional burnout...funny they seem devoid of feelings and emotions to me! What about the patients who are left in pain and suffering because of NHS failure????
Minor problem that but suffice to say that he has antibiotics and I will have to pay for a private chiropodist to repair them as the NHS dont consider that urgent and he would be on antibiotics for a year sufferring with them weeping otherwise!
We are off for a walk now in an effort to keep ourselves living and not going under with the feelings of pain and despair.
Karen x
