HI Jane
We have been faced with choices without really knowing what would work. Risperidone has been offered but since the suggestion was that Ali take this whilst having therapies to help him longer term as the drug doesnt heal but masks and there are side effects in taking it and the therapies have so far been refused due to lack of staff or funding I have gone down the nutrition route. I do find that a diet which manages his blood sugar levels goes a hell of a long way to controlling his sudden mood swings. Ali also needs to drink a lot of water to keep hydrated and calm. The nutritionist I see for myself as well also uses homeopathy and flower essences. Doctors are not trained or mainly interested in nutrition and yet if you had a car which was stuttering you would look at what fuel you were putting in it...sometimes I think we can be doing the equivalent of putting petrol in a diesel engine and wondering why our bodies arent functioning too well!!!
It does seem as though you and Cian have identified lifestyle choices which help him feel good which is fine whilst you can keep them up...like juggling plates it sounds??? Physical activity has to be good and it sounds to help him a lot. Personally I think Cian would benefit from a 1:1 support worker who can give him the security to pariticipate in an individual programme and take the weight off your shoulders. There are organisations who can provide this..one is Dimensions who will do a tailor made programme following getting to know the person. Southend are contracting them now...have you asked Cian's SW who they are contracting to provide this kind of service?? Have a look at
http://www.unitedresponse.org.uk/.....they look good???
Love
Karenx
