by krisistevens 19th April 2012
I thought things were getting sorted out earlier this year, but it looks as if the support system has once more failed me.
My aunt was admitted to a mental health unit at the start of the year following 5 years of hallucinations and delusional paranoia. I finally managed to get the psychiatric nurses convinced that she was having problems when she started calling the police several times a day to report men on her roof. I live close by, but will not have her living with me as I can barely cope with the 2 boys.
Her admission to hospital gave me a much needed break as it lowered my work load immensly, cutting out her medical appointments, daily care, shopping, cooking & cleaning & an end to multiple phone calls daily from the police. She was discharged last week with a diagnosis of Lewy Body Dementia & Parkinsons, and has, (on grounds that she has mental capacity) returned home. She had a care package in place, but has already fired the carers who visited in the evening & is getting up before they arrive in a morning. She claims to be eating & coping well, yet we find out of date food in the kitchen & fridge. She is insistant that her scissors have been stolen and that a thief has taken 4 pairs of trousers and a cardigan. Oh yes, despite being in a well detached double glazed bungalow, she can hear every word her neighbours say ( usually about her), and has dogs in her bedroom most of the time. When she sits brooding she rings the police accusing neighbours of attacking her, trying to break in, damaging her property etc.
Yesterday she took a taxi into town & forgot the number to get them to take her home. Luckily she accidentally called my number on her phone when she tried to switch it off, I've got my number on a speed dial as well as on her sim, so I got her a taxi home. She can't remember being in town. I know she has rights, but her rights are wrecking other people's lives. Her poor neighbour is 8 months pregnant & really doesn't need the police knocking on her door to see what has been going on & checking out my aunt's allegations.
As for life with the 2 boys, well it goes on and on & on. No signs of a school to meet Marc's needs, Seven SLD schools have said they can't meet his needs which suppose is better than no replies, at least the Local Authority have evidence that they have to use. His social inclusion supporter has resigned from the 4 hours a week that we had direct payments to cover, in fact the hours had been increased to 10 a week ,yet we've not had a single aplicant for the post which was advertised before Christmas.
Things really are insane in this country, I have £9 per hour awarded to pay for a supporter/carer to enable Marc to access social activities, yet I have to care for 35 hours a week for £55. It really makes me feel valued! Well undervalued any way. Where are the care packages and support that we hear off? How about the support for children with SENs? I've been searching & fighting for almost 10 years now & still getting nowhere. Direct payments are to be stopped from the iend of this month &yet another assessment done so that we can look into family links as a support package, but only of there is a suitable family.
My days are just a round of getting up, caring for the boys & my aunt, trying to keep Dad out of mischief, he may be shaky and 83, but he has no tolerance of anyone these days, so is to be polite, a grumpy old man & collapsing into bed again.
If it wasn't for the PC I'd have no social life at all, friends vanished long ago except for one, and she's now 200 miles away. Family can't help, as an only child there ain't anyone else to ask. My boys are still wonderful even though they're exhausting.