Blog posts in Carer for relatives

What support?

19th April 2012

Posted by krisistevens

I thought things were getting sorted out earlier this year, but it looks as if the support system has once more failed me. My aunt was admitted to a mental health unit at the start of the year following 5 years of hallucinations and delusional paranoia. I finally managed to get the psychiatric nurses convinced that she was having problems when she started calling the police several times a day to report men on her roof. I live close by, but will not have her living with me as I can barely cope with the 2 boys.

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Everything happens at once ........

10th April 2012

Posted by jakerleen

It feels like it's been the longest month I've had in years, and yet it also has gone so fast with everything that's happened. Firstly we had all the fun and games with Dom's EDS problems. This had ended in him needing bone density scans for osteoporosis etc. Supposed to be a 2 week wait only for the appt and still nothing after nearly 3 weeks ......

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RIP Pauline

17th October 2011

Posted by OneTruePearl

We're a bit sad today. I got a call yesterday to say my cousin died in her sleep yesterday morning. She was only 64. I had a good cry when I heard and told Mum straight away but she couldn't work out who had died. She heard me tell the carer about it this morning and asked who I was talking about and I think she's worked it out now. She was upset. So there we are: Mum's 91 with Alzheimer's and chronic diarrhoea, auntie's 92 with vascular dementia and they're still in the land of the living. My cousin, who we thought was in good healt

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WLTM anybody who has been granted continuing health care!

01st September 2011

Posted by OneTruePearl

Auntie has been in a nursing home since 27 June. As expected, we didn't get continuing health care for her - East Berks does it on a formula and she missed out despite having needs in 10 of the 11 domains. So I appeal. I challenge both the process and the outcomes and send off a tome about 30 pages long, complete with evidence. A month goes by and I hear nothing so I ring up. The appeal is being heard tomorrow.

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Placing somebody in a nursing home

17th July 2011

Posted by OneTruePearl

Auntie has had another stroke. It's quite serious. She can't stand up, she can't drink a normal cup of tea and she's on a pureed diet. The physio tells us she won't co-operate with the treatment and the doctor concurs. They remove her teeth, lose her hearing aids for 10 days and she loses 10% of her body weight. She was slim before; now she looks like a wraith. We literally pray for her to die and tell the doctor we do not wish her to be resucitated. He agrees she has no quality of life. She doesn't die though and sadly I r

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So I'm not a carer then?

27th June 2011

Posted by OneTruePearl

Before I gave up work I used to have a good job in the City and I still get mail shots about job vacancies. I saw one I liked last year but it was about 10 miles from home and I let it go. But I did tell the woman who sent it to me that I'd be interested in a few hours a week nearer home.

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Dealing with robots

24th June 2011

Posted by OneTruePearl

It was one of those weeks. We took the ladies out on Saturday and auntie had diarrhoea on the journey and there were no wet wipes in the van. Mum’s problem with faecal incontinence is worse than ever and I’m doing even more laundry than usual. I'd had a stinking cold too which makes it harder to cope.

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The other relatives!

23rd May 2011

Posted by OneTruePearl

I do have a life beyond caring and for that I am grateful. I'm an only child and have no kids of my own but my husband has 4 kids and 5 grandchildren. He comes from a big family as well. His Mum has a photo of her descendants as she calls them and it looks like a royal wedding! They all live a long way away but thanks to email and Facebook we keep in touch almost daily.

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