Blog posts in Carer for relatives

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Acting as a Court of Protection Deputy

24th July 2012

Posted by OneTruePearl

To anybody thinking about doing the right thing and serving as a Deputy for a relative: Don't.  It's enough to drive you insane.
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a few weeks later .........

29th June 2012

Posted by jakerleen

Well it's been a few weeks since I last posted but things are very different than they were.
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Repetitive idiot syndrome

08th June 2012

Posted by krisistevens

I'm creating a new syndrome for a significant percentage of the population of this country, Repetitive Idiot Syndrome. Symptoms: Inability to us common sense.  A need to create as much confusion a possible. Inability to communicate. Inability to comprehend obvious information.   I have explained to a so called friend constantly for the past 10 years not to try to force Marc to give eye contact, not to get in his space, to avoid interupting his train of thought and if she sees him getting angry to get out of his way pdq.
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Caring can damage your health

31st May 2012

Posted by OneTruePearl

People tell you that being a carer damages your health but when you have the constitution of an ox, like me, you don't believe them.  They tell you to be careful with lifting or you'll hurt your back but if you learn to lift properly you know you'll be all right.  Yet there are two things about caring that I know are damaging my health.
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What support?

19th April 2012

Posted by krisistevens

I thought things were getting sorted out earlier this year, but it looks as if the support system has once more failed me. My aunt was admitted to a mental health unit at the start of the year following 5 years of hallucinations and delusional paranoia. I finally managed to get the psychiatric nurses convinced that she was having problems when she started calling the police several times a day to report men on her roof. I live close by, but will not have her living with me as I can barely cope with the 2 boys.
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Everything happens at once ........

10th April 2012

Posted by jakerleen

 It feels like it's been the longest month I've had in years, and yet it also has gone so fast with everything that's happened. Firstly we had all the fun and games with Dom's EDS problems.  This had ended in him needing bone density scans for osteoporosis etc.  Supposed to be a 2 week wait only for the appt and still nothing after nearly 3 weeks ......
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RIP Pauline

17th October 2011

Posted by OneTruePearl

We're a bit sad today.  I got a call yesterday to say my cousin died in her sleep yesterday morning.  She was only 64.  I had a good cry when I heard and told Mum straight away but she couldn't work out who had died.  She heard me tell the carer about it this morning and asked who I was talking about and I think she's worked it out now.  She was upset.  So there we are:  Mum's 91 with Alzheimer's and chronic diarrhoea, auntie's 92 with vascular dementia and they're still in the land of the living.  My cousin, who we thought was in good healt
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WLTM anybody who has been granted continuing health care!

01st September 2011

Posted by OneTruePearl

Auntie has been in a nursing home since 27 June.  As expected, we didn't get continuing health care for her - East Berks does it on a formula and she missed out despite having needs in 10 of the 11 domains.  So I appeal.  I challenge both the process and the outcomes and send off a tome about 30 pages long, complete with evidence.  A month goes by and I hear nothing so I ring up.  The appeal is being heard tomorrow.
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Placing somebody in a nursing home

17th July 2011

Posted by OneTruePearl

Auntie has had another stroke.  It's quite serious.  She can't stand up, she can't drink a normal cup of tea and she's on a pureed diet. The physio tells us she won't co-operate with the treatment and the doctor concurs. They remove her teeth, lose her hearing aids for 10 days and she loses 10% of her body weight. She was slim before; now she looks like a wraith. We literally pray for her to die and tell the doctor we do not wish her to be resucitated. He agrees she has no quality of life.  She doesn't die though and sadly I r
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So I'm not a carer then?

27th June 2011

Posted by OneTruePearl

Before I gave up work I used to have a good job in the City and I still get mail shots about job vacancies.  I saw one I liked last year but it was about 10 miles from home and I let it go.  But I did tell the woman who sent it to me that I'd be interested in a few hours a week nearer home. 
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