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Snowball Effect...

29th November 2012

Posted by NinaSmile

Hey, I hope you are all smiling or have something inplace this weekend that will make you smile!  I have had one of those days today. You know the Snowball effect - where one thing happens, then the next, then the next and things get bigger?
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Update on EighteenPlus

29th October 2012

Posted by NinaSmile

 Hey all! I just thought ill would let you know what happened after I was in a Radio 1 Documentry about Young Adult Carers, we were contacted by many people,
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EighteenPlus, BBC Radio 1 and Me!

29th September 2012

Posted by NinaSmile

Note: The following blog post is from NinaSmiles, previously a YCNet user when she was a young carer, and now blogging on Carers.org about her experience of representing Young Adult Carers at BBC Radio1 show to be broadcasted on Monday, 8th October 2012 at 9 pm.  I am Carina and I am going to tell you alittle about a group I started for Young Adult carers and my trip to London!
2 Comments
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Broken

26th September 2012

Posted by OneTruePearl

I finally reached breaking point yesterday.  Caring for Mum has become very hard lately.  She's permanently in a wheelchair and her legs are so swollen that her skin is bursting.  The district nurse comes in twice a week to dress her legs but they don't say when or even what day they are coming so I am housebound a lot of the time.  For some months Mum has been waking up at various times during the night and waking us up in the early hours every night as she wheeled herself around.  I've been trying to get an emergency care needs assessment for her fo
5 Comments
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Another funeral

23rd November 2011

Posted by OneTruePearl

We went to another funeral yesterday, this time a friend of Mum's in her 80s.  She had Alzheimer's too.  Mum confounded us by recognising some of the congregation whom she hasn't even seen for over 2 years.  Not only that, she even recognised the name of the lady's son in law who gave the appreciation.  We met him 16 years ago when Dad had to go into a nursing home.  He was the hospital social worker and he was so good to us that I wrote a letter of support to his boss.  It was the first time we had ever dealt with a social worker.  A good start.
2 Comments
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Communication?

09th May 2011

Posted by OneTruePearl

Honestly, I don't want to moan all the time but I simply do not understand why hospitals are so bad at communicating with patients and their relatives.
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Help or hindrance

09th May 2011

Posted by OneTruePearl

Mum still goes to bed by herself but she's fallen when transferring into bed a couple of times of late and I can't get her off the floor on my own because she can't co-operate.  Even my big husband struggles.  So I called Social Services and asked for a bed stick. 
3 Comments
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800% increase in the cost of respite care

08th February 2011

Posted by OneTruePearl

I've booked Mum and Auntie into a nice Council-run care home up the road for two weeks in August so that my husband, Mother in law, son and I can go to Yorkshire for a couple of weeks.  We used the same care home last year and it was great.  In fact when she came home Mum was so enthusiastic about their "holiday" that I asked her if she'd rather be there than with us!
9 Comments
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Lucky to do this job

05th January 2011

Posted by mikehudds

Firstly I am really delighted to be given the opportunity to write this blog as part of the new website. I do hope that some of my thoughts may be useful to other carers. Initially I have been asked to give my thoughts on caring for my parents as a mid 30’s (well ok nearly 40) man. However I will tell you a little about my background first. My name is Michael, usually Mike.
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