Carers blog

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At last a Care Plan!

12th September 2014

Posted by Andy08

Further to my first blog in July, my wife and I saw our GP today and they have finally woken up to the fact that people with complex and serious conditions like hers need something more. They are proposing to introduce a "Care Plan", which will set out what they and we should do when things get bad, in order to try and avoid repeated A&E visits and hospital admissions.
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So government thinks that low disability do not need help.........

07th August 2014

Posted by Simone

Yesterday I had to take my daughter to have a MRI Scan on her ears. As I was there I realised that indeed my daughter could not manage without me. Firstly I had to get her to the hospital but even if she could be taught that she could not find her way around the hospital.Even I got lost. When we arrived in the right area we had to fill two forms up. My daughter understood what was being done but she could not answer the medical questions on the form so therefore needed me. This was also much the same at the dentist.
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Salou and the lovely people we met.

07th August 2014

Posted by Simone

Salou is a lovely area but I think we still preferred Barcelona and the city. We had a pleasant holiday but the heat was too much for me and Holly. I am glad she is no longer at school because I would have to be fined because I would not be able to go during scholl holidays simply because of the heat,
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Care for multiple conditions

15th July 2014

Posted by Andy08

Well here goes - my first blog, not just here, but ever! I'm a 48 year old father to two lovely kids - a son aged 11 and daughter of 9. I've been the primary carer for my now 46 year old wife for 7 years. She has a range of complex medical problems and has been constantly in and out of hospital during this time. We estimate she has spent around a year and a half of the last 7 years in hospital if you add it all up and has been through A&E probably 50 times in the last couple of years.
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Caring takes time and effort

18th June 2014

Posted by Simone

Just some things that have come up this week. 
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My Hero, My Inspiration

07th June 2014

Posted by Manisha Tailor

Since 8 years old my twin brother and I together ate, drank and breathed football – it was pretty much our life.  Joint at the hip, our love for the game both playing and watching continued until late teens. Unfortunately, as a result of a series of traumatic events, my twin became depressed – and 15 years on, continues to suffer from the taboo within football and the Asian community, ‘mental health’. 
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A Smile Is Worth A Million

31st May 2014

Posted by Simone

With all the current cuts. I know so many can not afford a holiday. I don't think it is right to take away a disabled persons DLA. More so when many disabled can't work or never get employed..............and when they have no other income............... We have managed to book a holiday out of savings.It is the best thing I could have done. My daughter has struggled so much coping with emotions and coping with her life.
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No life of my own...........

22nd May 2014

Posted by Simone

I cry sometimes when I think of my life because I have had no life really. The only thing that keeps me strong is thinking my daughter's life is even worse as is her future.Hoever there are happy days too but life could just be better if the right help was there. We are not helping carers enough and so many learning disabled just get left behind and forgotten.
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Mild disabilites still need help.. Eg: Going on holiday.

22nd May 2014

Posted by Simone

The government seems to think those with a milder disability don't need help. So as we are going on holiday. I thought I would write a blog about what I have had to do so far so my daughter can enjoy a holiday. First of all may I remind you that I am getting no help..
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I no longer know what to do.

09th May 2014

Posted by Simone

It has been a while since I posted anything simply because my health has not been fantastic. I can not believe it has been so long since I wrote anything. Life has got worse rather then better as I continue trying to cope. I have had no help since 2008 and no time for myself at all. The situation has been grim as I simply do not know how I am going to get help. I do not wish to see Social Services and nor does my daughter. She does not reach the criteria for help  anyway so I am stuck. So it has been down to me and me alone.
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