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Some Carers want to work but the support isn't there.

17th April 2013

Posted by Simone

I thought it was important to put a blog about working and support as this truly needs looking at. When I first got married and a young carer you know very little. The information didn't come to me. I didn't claim carers allowance until years later. It was impossible to find babysitters who could care for a daughter who was constantly screaming and also choked often.
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Inhumane:.Help needed with jobs like housework, shopping or gardening does not count.

16th April 2013

Posted by Simone

I have been busy reading a few stories written by disabled people. They are all over the internet..... The Welfare changes make horrific reading....... and stories of situations and how sickness affects a person  some stressfull and worrying situations..
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Save the NHS: I don't agree that GP consortuims is the best way.

14th April 2013

Posted by Simone

GP's will be handling the NHS budgets from now on. For me this is not very good news. I have fought with many to stop this bill going through. So much will be open to the private sector and over time they will take over if something does not change. So many children with complex conditions will suffer with a fragmented service as time passes the private sector will take over. Gp's have little understanding of conditions like Turner Syndrome and much the same for learning disability. However you will always find one GP knows more then another.
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GPs to be paid £33 per patient to assess eligibility for new disability benefit

13th April 2013

Posted by Simone

GPs will be paid £33 to fill out a new form determining whether patients are eligible for the Government’s new personal independence payment (PIP), a scheme the GPC has warned may ‘harass’ patients with a health condition or disability. The PIP replaced the disability living allowance this week and GPs will be required to give details of the diagnosis, history, variability, treatment and the impact of the condition on the patients’ life, for which they will be paid £33.50 per form. Read the rest:
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I can't manage any longer without some kind of support.

29th March 2013

Posted by Simone

My daughter who has moderate needs was discharged from Social Care in 2009. I presume because of the cuts. I didn't persue it at the time as I was busy with her legal case that never went anywhere. I was then left exhausted for a few months and my main priority was to get my health back to reasonable. I am now going to have to start another round.
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I have lost faith in all Political Parties.

22nd March 2013

Posted by Simone

As I am almost 60 years of age I have experienced life. This year is the worst under the tory government and have to admit that I no longer have faith in any Political party.Why can't we have one political party that works for the good of all man bringing fairness to rich and poor and to Earth........
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Learning Disabled:I can't keep my daughter positive about life..

16th March 2013

Posted by Simone

I remember Maria Miller telling me that the new PIP assessment is supposed to help support carers and many with a disability even more. One only has to put this in google and read the real life stories of people and how PIP will change their lives.
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A foggy night

08th March 2013

Posted by Simone

I take my daughter to karaoke each week as she loves singing. It was a pleasant evening and some young man cheered my soul. He liked my daughter's singing and wanted to give us a bottle of champagne. It was a lovely gesture (even though my daughter doesn't drink). I enjoyed one glass and told him to take it as I was driving. However before we went home, he brought me the bottle and said take it home.
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Carers what do they matter?

01st March 2013

Posted by Simone

How many times have I heard that government wants to hear of my opinion on social care? Being a carer of 25 years I have known a few political policies. None of them have worked. They don't really want to hear your opinion as nothing positive ever changes for carers.
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Friendship and compassion

01st March 2013

Posted by Simone

Something has to change. My message to young non disabled: can you imagine a world without your friends? Can you imagine not having anyone to text or sitting alone in a pub with no one to talk to but your mum? I say to you: it is time for CHANGE. My daughter is 25 years old. Yet she goes out with me as she has no friends. How would you feel if you had no friends? No friends to text... no friends to talk to, no friends at all but your mum?
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