Carers blog

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You, Yes you fellow carer......

17th December 2014

Posted by Gemsie

   
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Over The Hill

08th December 2014

Posted by PositivePolly

­ When should we consider that finally we've got to the age where we're 

Carer's burn out.

05th December 2014

Posted by sylvie

H i Carer's i wanted to talk about carer's burn out, we all get stressed when caring for our charge, I wanted you to know how i deal with it, I get my days when i feel down but i sit down and think ,All the crying and feeling sorry for myself and my charge will not alter my situation so i pick myself up and think i am blessed in many ways, Have you tried a little yoga with a relaxation tape or even taking some time out to listen to the music it really helps.
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BURDEN OF PROOF

30th November 2014

Posted by PositivePolly

Something happened recently which has become a bit of a burden....I am having to manage with a wide crust of the bread cut off and make do with the middle bit..minus a bit of filling....It might taste the same but I'm missing the best bits...   It is a teaching never to assume things will stay the same even if they are...   Decision makers will always base the need on the money...and money determines the need regardless of what that need is....The incentive to take aw

NEW BEGINNINGS

29th November 2014

Posted by PositivePolly

This is my first blog on here so I'd like to introduce myself to everyone. My name is Charley. I'm 49 years old and I have been caring for my son since I was 20. He has Autism, Learning disabilities & complex partial seizures. I have three children two sons and a daughter. My other son is 28 years old and I was given a choice many years ago of whether to have him diagnosed with Autism as he was on the borderline. I decided not to have him diagnosed. I also have three lively grandchildren.
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Caring and coping with a chronic pain suffers

14th October 2014

Posted by Andy08

Not long after I posted my first blog, my employer and I came to the mutual conclusion that it was no longer feasible for me to fulfill my caring responsibiities and work full-time (including commuting in to London). I left work in mid-July and since then have been attempting to build up my own business from home. It's slow going and at the same time my wife has been even more unwell. As I sit downstairs writing this, she is more or less confined to bed and spends much of the day (and night) moaning and crying with the pain more or less constantly.
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At last a Care Plan!

12th September 2014

Posted by Andy08

Further to my first blog in July, my wife and I saw our GP today and they have finally woken up to the fact that people with complex and serious conditions like hers need something more. They are proposing to introduce a "Care Plan", which will set out what they and we should do when things get bad, in order to try and avoid repeated A&E visits and hospital admissions.
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So government thinks that low disability do not need help.........

06th August 2014

Posted by Simone

Yesterday I had to take my daughter to have a MRI Scan on her ears. As I was there I realised that indeed my daughter could not manage without me. Firstly I had to get her to the hospital but even if she could be taught that she could not find her way around the hospital.Even I got lost. When we arrived in the right area we had to fill two forms up. My daughter understood what was being done but she could not answer the medical questions on the form so therefore needed me. This was also much the same at the dentist.
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Salou and the lovely people we met.

06th August 2014

Posted by Simone

Salou is a lovely area but I think we still preferred Barcelona and the city. We had a pleasant holiday but the heat was too much for me and Holly. I am glad she is no longer at school because I would have to be fined because I would not be able to go during scholl holidays simply because of the heat,
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Care for multiple conditions

15th July 2014

Posted by Andy08

Well here goes - my first blog, not just here, but ever! I'm a 48 year old father to two lovely kids - a son aged 11 and daughter of 9. I've been the primary carer for my now 46 year old wife for 7 years. She has a range of complex medical problems and has been constantly in and out of hospital during this time. We estimate she has spent around a year and a half of the last 7 years in hospital if you add it all up and has been through A&E probably 50 times in the last couple of years.
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